realism

Confessions of a chronically ill mum #12

April 26, 2022 — Leave a comment

Three months I’ve been writing these, and they are basically just a way for me to brain dump, to offload and overshare. However, when I look back to number one, I can also see personal growth. Those confessions I wrote in the first few chapters of COACIM were so much bigger than the ones I’m bringing to you now, and that’s because things have changed.

So what’s been happening? A lot actually. But before I get into it, I have to admit that having Shaun off over Easter for a week was undeniably helpful. This week, I am feeling done in. My joints hurt, I have brain fog, migraine symptoms and generally feel under par. It’s only two weeks since I last felt like this which is proper shit as it means this menstrual cycle, PMDD and Fibro symptoms are massively overlapping, and ergo exacerbated. The last week of the Easter hols was just me and the kids, and surviving that after a week away and all of us contracting norovirus, along with my normal and new symptoms, was pretty tough going.

You know what though, I’m proud of me. I’ve been relentless with this PMD Awareness month stuff, now having raised over £500. I’ve had so much support, mostly from strangers online as per, and those IRL proper mates that show up for you whatever shit you’re spouting about on the gram. I also participated in two instagram lives, one with IAPMD and one with The PMDD Collective; you can check them out below.

LIVE with Brett from IAPMD
LIVE with Emily and Ally from
The PMDD Collective

I’ve finally got childcare sorted for going back to work. Kaiser has had his settling in sessions, he did really well, especially as it’s at two different settings. We’ve been together for such a long while now that I imagined him to be clingier, turns out if you have snacks and give him lots of attention, he’s anyones’

I have a few things going on health wise. Mentally, I’m trying to prepare for being discharged from the perinatal service, and it’ll come as no surprise that one of my confessions is that, I’m terrified. I’m worried of how I will measure up without a team of people supporting me and fighting my corner. Physically I’m still waiting on test results for a second diabetes check, and appointments for my heart issues as well as physio.

I’m due to return to my job in less than a week, so I’ll have to adjust to life back on the 9-5 for those two days. I’ll confess that I’m not looking forward to it. To say that I am would be a lie. In all honesty, it’s nothing to do with work, they’ve been great and supportive. It’s all to do with me! The reality is I don’t know how I’m going to fair as an increasingly disabled person, and mother of two other persons, back in the working world. With our financial situation as it is at the moment though, there is no other viable option and this makes me very stressed indeed. I feel like I am only just coming through my recovery journey of perinatal mental illness and regaining my mobility, whilst still managing an ever increasing list of health problems, and I’d be lying if I said I didn’t think work was going to upset the equilibrium I’ve finally established in my everyday life.

I’ve realised since being involved with IAPMD this month how much I love my advocacy work and I’d really love to be able to keep giving back, writing and making a difference but again, I don’t know how achievable that will be once I’m back doing what I have to, to put food on the table. That said I still really want to expand my blog, upload the fiction I’ve been working on and share that with you all. I also have a new interactive feature coming soon!

Dear Steph is a new agony aunt style feature where I’ll be answering your questions about almost anything! Just for fun. My friend Amy keeps on telling me how wise I am, and during my collaborative work with House21 I was often told I should cameo on their Dear Donna feature! So I thought fuck it, and decided to go for it.

I hope you’ll send in your problems or confessions for me to comment on to divamumsteph@hotmail.com adding Dear Steph in the subject line. It can be 100% anonymous if you so wish. Serious and funny/questions/problems welcome.

There are a few restrictions, mainly because I need to protect myself and make sure I’m offering support to anyone who writes in. (Knowing my luck nobody will -LOL)

Important to note, I’m not a professional so if your topic includes any of the following please seek professional support.

  • Sexual assault
  • Illegal activity
  • Health issues that require a medical opinion or further investigation.

I will happily give my advice, personal opinions and share my experience on mental health and or chronic illness, but if you require specific medical advice please seek support from a qualified practitioner.

I want to hear your most embarrassing moments and comment on them (no judgement here) I want to hear about your relationships, struggles, motherhood woes and workplace dramas. Is your mother in law driving you up the wall? Have you fallen out with your best friend? Maybe your partner is giving you the ick? Or are your kids’ as feral as mine and you need some reassurance that it gets easier? Basically I’m trying to fulfil one of my younger selfs’ dreams of having my own agony aunt column in the back of That’s Life magazine. So do me a solid and send in your woes and faux! Dear Steph will start as soon as your emails come in, and I’ll respond to one a week, once a week, on a Thursday.

We are still telling Mums how to feel?

September 15, 2020 — Leave a comment

I feel like I needed to share this. Not just to moan about feminism and stereotypes (though there is some of that) but because it irks me that the message isn’t yet clear. For some unknown reason we still feel it’s our right to tell other mums how to parent. How to feel. We are still putting mother’s in boxes of ‘she should’ or ‘you’d think she would….’

So to put this into some context for you, my daughter started school the first week in September. It’s her first year. Before covid she was at preschool 4 days a week, but since covid she’s been home with me since March. No childcare because preschool didn’t reopen until September either, by which time she was ready to start school. The most common questions I’ve been asked since people learned she was set to start school are 1. When are you having another baby? And 2. I bet you’ll hate it when she’s at school won’t you?

Note question 2 is in fact a statement, posing as a question. An assumption based on zero background information. It’s only merit is that because my daughter is starting school the presumption is I’ll have too much time on my hands. I’ll be bored. I’m her mother so I’m bound to miss her implicitly when she isn’t around for any length of time, but more so when that time is spent at school. Right?

Well sorry to act offended at your presumption but it does in fact feel offensive that you assume my life is less fulfilling when I am not around my child. There’s an undertone that when I state how, in fact I’m excited for her to be starting her new journey, and I’m excited for me too, getting to have some time to myself again – it’s as though I’ve implied in some way that I don’t love her or I don’t enjoy being a mum.

What’s more disappointing is that these statements are usually made by other women. Perhaps women who do love being at home with the kids. Which by the way is perfectly fine. There’s no right or wrong way to be a mum. You might love being with them so much that you’re going to feel a sense of loss when they go to school. Nostalgia for their infancy, and that’s perfectly acceptable, but so is looking forward to them going to school, looking forward to snippets of alone time or getting back to work and routine. A lot of women have to work nowadays in order to support the household, and this means we have to leave our children, but just because we have to, doesn’t mean we can’t want to at the same time.

I love the quality time my daughter and I spend together but I also love time to myself.

My circumstances might be unique because I’m chronically ill, and this often means I need to lean on people for support with childcare, sending her to school just means less relying on others and more time to recover. I’ve waited a long 7 months for some rest and I will wait less than 6 weeks at the start of term, for a week off with her when half term comes around.

The climax or crux of this article is this. We all parent differently, we all feel differently about our children as they grow. Some long for the baby stage whilst I love the here and now stage. The one where’s she chatting, drawing me pictures and telling me she loves me. Just because you don’t miss your kids every minute of the 360 she spends at school a day, doesn’t mean I love her any less than the next mum. I feel like we need to get better at normalising feelings of discontentment in motherhood. Feelings of normalcy. Feelings of desperation and in this case the lack of feelings in regards to empty nest syndrome or ‘school mum life’

As mothers we are weighed down with responsibility, organisation, emotional reactions, not least the physical endurance that is required to keep up with our mini me’s. We don’t need to feel the weight of someone else’s judgement whoever that someone is, but particularly less from another mother. We’re part of the same club now hun. The Mum Club. And I think we should try and make it wholly inclusive. What do you think?

Three things

July 23, 2020 — Leave a comment

I was having a little rest from socials wasn’t I? But the truth is I often feel so much relief when I express how I feel here, insta or on my blog, that it’s become a compulsion to just get it out of my head. This is me. Straight up. No bullshit. Being my true self.
I know I will never win any prizes for flying under the radar, but what of it?
My latest battle is a cycle of Mum guilt ergo
Wifey guilt. Guilt about work. Guilt about shit I did 15 plus years ago and since. Guilt about guilt. Guilt on guilt.
Currently I have this desperate need for a break from our diva child. It’s like a certified panic button that only she can force me to press, followed by an overwhelming sense of ‘This is her last summer before school take in every second. Finish that scrapbook. Build a fucking tree house and what not.’
I feel like I’m depriving her of valuable time and offering up instead stale days in front of a screen wearing 2 day old pjs.
We fucked off last week, down the coast for a bit of R&R. Our honeymoon holiday in the costa brava with a hot tub clad chalet got cancelled, and we’re still waiting for that refund so we settled for a caravan substitute. Nice caravan too, but of course I ruined it with an obligatory 2 day migraine. Throwing up battered cod into a 2×2 toilet with zero soundproofing and spending the following day with the curtains closed and crying about my uselessness.
It’s so traditional for me to ruin holidays with my health now, that we don’t even consider planning excursions without a day in between for little ole’ me to catch up.
Such is the Spoonie life. Ciara didn’t care less of course. She had Daddy to herself for a day and as always he dutifully complied with her ever growing demands.
So lucky am I to have him as my husband aren’t I? Queue more guilt about how the poor fucker just signed his life away to a woman only capable of frolics approximately 2 days a month – the rest of the month is spent recovering from that thing we take for granted called life.
Anyway whilst I’ve been torturing myself, and it has very felt much like torture in this chubby little head of mine, I got to thinking. So there’s a list as long as Peter Crouch’s leg that consists of why I’m the worst wife and at best, average parent, but I reckon there’s a few things I’m good at. Surely?
I’ve been using this app for a while called Three Things. (Not an ad! It’s a free app too) Every evening you are prompted to write 3 positive things that happened during the day. Somedays though, I just can’t do it. And somedays I’m so trapped in a negative spin cycle that I just don’t want to. So instead I’m doing something a bit different starting today. I’m going to write 3 things I like about myself, every day. It’s a challenge, but I have to get back on the positivity train soon, before I go off the track to no return.
3 good things might not occur on a day spent in bed with a migraine or crying into my pillow cause I can’t find the T-shirt I wanted to wear and I’m due on BUT…..What if I just decide that I have good hair, which I do (if a little grey under the ‘natural colour’ that I now dye it) or that my toes look cute on my tiny feet. Or that I did a good deed and I like myself more because of it? ✔️✔️ ✔️ 3 things. Everyday. I’m no therapist but even I know the key to my happiness isn’t hanging on someone else’s keyring. Whitney said it didn’t she?…. “learning to love yourself…” sing the rest. 🎵
So I’m starting today. I haven’t thought of the 3 things yet, so I can’t share them, but if you think of 3 things you want to share over here, please do. And even if you can’t, start with 1. Start today. And just keep going. Practice makes perfect. Pick something about yourself that’s a quality you’d want in a friend, or don’t. Maybe this is a bit ‘cheese on toast’ but I’m feeling positive about feeling positive, even if it’s just for today because one day at a time, right? Three things. ✅✅✅💗

Tired and Needy – the follow up to Love For Lockdown.

April 22, 2020 — Leave a comment

I wrote a post a little over a week ago about my love for lockdown. I still love lots about it, like the family bubble and not having to worry about the outside world. In fact I still love it—full stop! Buuuuuut, I’m also losing my shit a bit. I’m still worrying about stuff that isn’t on the scale of importance to most people.

Like it’s a rollercoaster, right?

Up, down, plateauing and plummeting.

I struggle with life under normal circumstances I don’t ‘cope’ well on a daily basis. Well some might say I do cope well, and others think I’m mad.

— Balance

Writing is my salvation but I have to admit there’s little inspiration flying about my gaff, so I’m losing my creative flow and my anxious mind is finding room to fill up the creative space instead.

If you suffer from anxiety you may relate to some of this. Or you might think I’m a nut job. I am.

I have a brain that understands rationale but doesn’t practice it.

I have a desperate need for reassurance and it’s exhausting to be honest: it’s exhausting for me, it’s exhausting for my friends, my family, and  it’s exhausting for my husband.

Years of therapy and we’re no further forward in killing the bug that is my insecurity.

I know where it comes from – I don’t need a £50 an hour shrink to tell me about it (again).

I know it’s not rational or reasonable but I genuinely can’t help it.

I can’t help how I feel inside my head sometimes. I say sometimes, because it’s not all the time. Sometimes I am content, it can be fleeting, but it does happen.

I am one of the first people to harp on about getting the help you need when you need it for your mental health, but I have had help, lots of it in abundance, and variety.

I’m not fixed, because you can’t ‘fix’ people.

I manage better, better than I did 10 or 15 years ago, but my neediness and insecurity hasn’t dissipated, it probably never will, because it’s part of me.

It’s in my makeup to worry, fret & overthink.

During this lockdown I’ve occupied my days with all sorts of filler. Some of it has been really pleasant and some of it has been unintentionally damaging. The trouble is you don’t always know which is which until it’s too late and even things like reading books and watching TV can play a whole heap of havoc with an anxious mind.

If you too are feeling tired and needy I can only reiterate the importance of having a mental clear out! You’ve probably heard this a lot during the span of Coronavirus. I’ll say it again anyway.

Take time to find things that bring you small wins.

—Something that makes you grateful.

—Do something you enjoy like painting your toenails or going for a walk.

—Cook something exciting.

—Phone a friend.

—Be wary of what you’re watching and reading. I love nothing more than crime thrillers to read, but sometimes they get inside my head and it can create a state of heightened anxiety without me even realising it.

—Pick something you love about yourself and focus on it for a little while.

—Cuddle your kids and remind yourself you’re doing your best.

—Most importantly, be kind to yourself. It’s a tough time for all of us.

You’re not wrong for feeling how you feel. You can’t help it, but you can try to do little things that reinforce the positives. I’m trying to take my own advice today. I’m trying to do a few small things that help me feel better about myself and the current situation. Some days are all consuming and it’s ok to fall apart every now and again.

Feeling guilty about it won’t help. Instead try and concentrate on what’s needed to put yourself back together again.

I won’t profess to own the secret to a positive mindset, it’s something I battle with daily, but it’s also something that really does work if you can get the can of it. Positive minds attract positive vibes.

Love For Lockdown

April 6, 2020 — Leave a comment

People keep saying things to me like ‘can’t wait to go out when is over’ as if it’s expected that we are all super excited about socialising again. We must surely all be desperate to get to that overcrowded bar with friends we’ve been avoiding for ages?

No, I’m kidding – normalcy is an exciting prospect, but it seems we’re all presumed chomping at the bit to get back out and paint the town red, and the truth is, I’m not.

Don’t get me wrong, I can’t wait to get my freedom back, buy what I want in shops of my choosing, and get my lashes done, but socially I feel quite content in my little family bubble, for now at least.

Just my husband, daughter and I, plodding through the everlasting days with nothing to rush for. Working to an untimely schedule. The only million dollar question being, what’s for tea?! Mealtimes providing fattening structure to our days.

That’s not to say I don’t like people, or want to see my friends and family, I do desperately. But… and there is a but. Before lockdown, I always got an overriding sense of FOMO. I’ve mentioned before how living with a chronic illness and not being able to do all the things I could do pre diagnosis, can sometimes leave me feeling left out of social events. It’s probably true that it’s a lot to do with me, and less to do with the organisers of said events, but…. lockdown, isolation, quarantine, whatever you want to call it, has actually massively reduced my fear of missing out.

I mean obviously, because we’re all missing out now aren’t we? Or are we?

What’s your perspective?

Let’s skip to the facts, coronavirus is a killer, it imposed on our world as we knew it a few months ago, and it’s definitely nothing to be THANKFUL for. However it is making me appreciate life’s simple pleasures.

It’s making me feel less of a let down about not being socially available. I don’t have the constant conflict of having too much in my diary, or not enough, subsequently playing havoc with my insecurities. It’s awakened me to getting the best use of my time too. I even wrote a schedule last week and felt suitably joyous when ticking it off. A lot of people love a Mrs Hinch style list, and I’m usually not one of them. I’m the people admiring said list slayers from the sidelines whilst winging it and getting much of nothing done. Ticking off the days activities this past week has given me a sense of achievement, one that I don’t get from the daily grind of the 9-5. I think it’s fair to say that I’m coping ok. It’s not easy for any of us, and I won’t pretend being imprisoned in your two up two down semi is a holiday, but we’re making the best of it. My daughter just turned four and she was due to have a party and we were off on a caravan holiday.

When cancelling these I cried for days, I didn’t know how to explain it to her. After a week at home I asked her again what she would like to do for her birthday and she said……Feed the ducks please mummy, we have a local moat at the back of our house and so feeding the ducks is what we did. Along with hunkering down in the Lay-Z Spa for most of the day. Which may I add was a lockdown online impulse buy.

My heart swelled with pride at this almost four year old’s ability to adapt to getting pleasure from the simplest of activities.

It’s my own birthday this week too and I feel uncharacteristically calm about not having any plans. It’s no secret I am a diva and usually I pack in more than I’m up to achieving at this time of year, then get pretty upset when I crash and burn. Lockdown is providing me a safe haven with my family and I don’t have to feel sadness over people not coming out for another birthday booze, or disappointment that I didn’t lose the weight I wanted to for intended booze up, because I’m not having one.

I know this probably sounds ridiculous, maybe even a little sad, but I feel quite the opposite about it. I would love to see my family on my birthday, but I’m also glad I’ll be spending it with my very nearest and dearest, and I didn’t have to consider any other kind of strenuous activity.

I know in the long term, this new found comfort will fizzle and I will be back to climbing the walls – but for now I’m just rolling with it. Whilst keeping me and mine safe.

My only concern left for lockdown apart from the obvious and outright depressing (keeping our jobs/ home schooling etc) is how many snacks my kid is eating. The child is likely to ‘I want a snack’ us to our deaths if she’s not careful. I’ve tried and failed explaining to her we aren’t allowed to panic buy KitKats!

Article also available to read here https://www.house21.co.uk/news-opinions/love-for-lockdown/

A Decade Of Lessons

December 28, 2019 — Leave a comment

The last 10 years

Well, it’s been a testing decade that’s for sure, but it’s also been the most amazing pilgrimage of self discovery I’ve ever been on.

I feel like the last decade is where I really became an adult and anything before was part of my youth.

In 2010 I was glassed in a nightclub in an unprovoked attack whilst out with friends, and it shook me beyond measure and took me to a place I didn’t know existed. I’d been in fights before, been given a slap when I probably deserved it, in my teens, I’d even (believe it or not) been hit with a bottle before, but it hadn’t shattered the first time and this was on another level. This was in response to me just being out having a laugh with friends, and it could have left me blind. Thankfully, physically most of the scars are on my décolletage and not my face (though I do have a dent in my skull) it could have been a lot worse physically.

But despite keeping up appearances, mentally I was scarred beyond recognition. I was scared too just by the weight of the attack, but in being scared I got angry.

I went ‘mad’ for want of a better word. I was wild. Following that night every time I went out I braced myself for a row and alcohol only fuelled that self destruction. I got in more rows and fights than I’d ever had before. I rowed and physically fought with my then partner, and when I ended that relationship I continued down a rabbit hole of hell.

I did some messed up things and 2013 saw the catalyst to that phase of crazy.

I lost my job, almost my house, and I was alone. Friends had given me a wide berth and my nights out were spent with people I didn’t even really like and who only hung out with me for some drama or entertainment.

I’ve always had a need to fill the shoes of the life and soul of the party, but I’ve filled them by acting like a fool. Being the loudest, the craziest and the wildest person in the room.

I met my now partner at the end of that year. I saw the new year in in Ireland with a good friend and it was like something just clicked, an epiphany if you like, and I didn’t want to be that self destructive, unemployed mess, that I had become.

I got a job, a pretty good one, and from there life has progressed at a steady pace. The following year I was shaving my hair off for charity and raising thousands of pounds. I’ve had some backslides, like being diagnosed with Fibromyalgia and it’s affect on my both my physical and mental health. Having a baby wasn’t an easy feat for me, and it can be hard work just being ‘normal’ most days, but I’m surviving it, and thriving too.

Last year my mum nearly died from a freak fall and I can say with certainty, I’ve never been as scared as I was then. It puts what’s important into perspective.

Nowadays I don’t feel like I’m falling from Beachy Head every time I wake up. I don’t want to hide for a week after a night out anymore, and I don’t wish I was dead. Even on the bad days, I’m glad to be alive.

I still feel like some days I fight stigmas and a bad reputation, but it took me a long time to make it, so I guess it’s only normal that it will take me a long while to break it, too.

That being said, my future is bright and I’m lucky. All the people in my life are in it because they want to be and contribute in some way to helping me be and feel better. So I’d say, despite all of that drama, this past decade has been pretty spectacular and I’m looking forward to the next one. Taking nothing for granted is my only resolution.

Happy new year 🥳

Just another chronic illness blog

December 21, 2019 — 2 Comments

When I got diagnosed with a chronic illness I didn’t get the same quota that you get when you’re told you have pneumonia or you break your leg. I didn’t get ‘get well soon’ cards or flowers – which I guess is a good thing as get well soon doesn’t really exist in the chronically ill community. But we still appreciate the sentiments.

I don’t get much love for my illness, I get eye rolls and people annoyed at me talking about it again, but I don’t get much love.

I get people accusing me of using it as an excuse and comparing me to people with the same problems. But not love.

I get disbelieving shakes of the head and funny looks when pulling into a disabled parking space, but not love.

I get people telling me to be positive and exercise more but I don’t get presents or hugs.

Imagine waking up one day and not being able to get out of bed, yesterday you could of ran for the bus, but today you can’t move. Now imagine feeling too ashamed to talk about it for fear of being dismissed, accused of faking, or mocked. Because that’s what living with chronic illness is. That’s what happens when people can’t see your pain. They assume it doesn’t exist or that you’re making it out to be much worse than it is.

Even your friends think you’re exaggerating, and even your family get fed up when it encroaches on plans with them yet again. When I tell people I have to pace myself or I’m not feeling too good, I literally brace myself for their reaction. Nobody ever says, it must be so hard, I admire your strength.

That’s why I write it down, and that’s why I share it on the internet with people whom I’ve never met. Because some of those people get it and they aren’t (at least not visibly) rolling their eyes at yet another post. People are happy to offer you their support for the occasional bout of misfortune, but when it‘s ongoing nobody wants to get dragged down with it. I get it! I really do, I’m a realist, I know it’s hard for people to understand, and it can be miserable to hear about, but imagine living with it.

Imagine just for a minute that it’s you who’s sick all the time. Then imagine feeling like nobody cares. Feeling like you’re burdening people whenever you talk about it, feeling guilty for being sick, imagine how lonely that gets.

Everyone has their own battles and some people have it much worse than you or I, that’s a fact. Some people have the same illness on a different level and some people have diseases that are killing them.

What living with a chronic illness has taught me is not to make assumptions on people’s lives, to believe people when they tell you they’re suffering, and to remember to check in on your friends. Pain changes people, in different ways, sometimes it’s empowering and when you’re on top of it you feel like you’re winning, other times it’s dark and makes you wonder what’s the point of living at all if this is how you’re destined to feel everyday. It’s overwhelming and hard to explain – but by sharing my experiences with it I’m remaining sane. I’m not hiding and so that is the reason behind yet another chronic illness post. If you know, you know. 💜

View this post published on The Mighty here.

https://themighty.com/2020/01/when-people-cant-see-your-chronic-illness/?utm_source=engagement_bar&utm_medium=link&utm_campaign=story_page.engagement_bar/

No cure

October 10, 2019 — Leave a comment

Yesterday I had my first sick day in my new job. I’ve been there under 3 months. And until now, so far so good, been taking breaks on my days off, getting enough rest whilst still having a life, looking after myself, taking my medication. Then yesterday I woke at 3am feeling nauseous and it wouldn’t go away. It was bad I couldn’t sleep. I text my supervisor in the morning to say I wouldn’t be in and spent the rest of the day in bed with a full blown migraine. You know the ones where even your phone is too bright and your guts feel like they’re falling out of your asshole?

I’m home today too, the headache has subsided but the sickness is still there, I still feel weak and unwell and generally crap about myself.

You see the thing is, back in July I had a daith piercing and I was convinced it would cure my migraines. So to learn it hasn’t has really fucked me off. I also feel shit about being home. There’s no cure for migraine, just like there’s no cure for Fibromyalgia or PMDD and I have those too, but I feel terribly guilty about it. Because I’m not a skiver, I’m not a lazy bitch (unless I have a hangover) and I genuinely feel awful when I let people down.

When I first got diagnosed it was a relief, I had loads of text messages and social media likes, telling me how relieved I must be to know I’m not going mad. I was!

I had loads of sympathy messages too, but they have a shelf life. And when you have something that can’t be cured people get bored. They don’t understand why you’re still going on about being ill all the time. Everyone knows, you don’t need to keep banging on about it.

But I do need to. I need to because that’s the only way aside from the world all contracting the same illness, that people understand. It’s the only way to spread awareness and helpful tips. It’s the way I feel most comfortable explaining it and so that is why I ‘make such a big deal out of it‘ it’s not for the sympathy as let’s be honest that shit dried up years ago. It’s not because I’m craving those text messages that don’t often come anymore, it’s because they are diseases that nobody ‘gets’ nobody really believes.

“You said you have a migraine but really it’s just a headache, here, take some asprin”

“So and so has fibro and she doesn’t go on about it all the time, she still works, she doesn’t even take medication”

“Yeah I believe she has it, but she definitely plays on it”

“It’s just a period every woman has them, stop moaning”

If you suffered migraine you would know an asprin is about as useful as a cock flavoured lollipop, once an attack has started. If you had fibromyalgia you would know it differs in intensity depending on a whole world of factors, even down to the weather! And if you had PMDD you would know that before your period comes there’s a good chance you may have considered the fact you’ve lost your fucking mind and begged your doctor to section you only to feel ‘normal’ again when aunty Flo pops in. If your mum had it and couldn’t work, or your sister, or your best friend would you say that about them too?

Anyway – the point of this post was more for me than you, the reader. It was more about assuaging my own guilt, because guilt is an emotion that the chronically ill can’t escape. I feel guilty that Shaun had to cook his own dinner after he’d been at work all day yesterday. I feel guilty that Ciara had yet another sleep over at nanny’s because I knew I wouldn’t be able to get up and see her off to school this morning because the medication I took last night meant it probably wouldn’t of been safe for me to drive, that’s if I even heard my alarm. I feel guilty for looking at my phone when I should be resting. I feel guilty for having a life on all of the other days because if I didn’t I might not feel this shit today. Guilty Schmuilty. It’s shit. It doesn’t matter how many well wishes people send, how many ‘you can’t help being sick’s’ I hear, I still feel guilty. I know I will always feel guilty until I get to a stage where maybe one day there is a cure, or maybe there’s something I haven’t tried that will help me manage better. I feel guilty for letting my family down on days when I’m bed bound. I feel guilty for letting my lovely new colleagues down on days I can’t work. I feel guilty for saying when I feel ill. I feel guilty for cancelling a night out or a meet up. But most of all I feel guilty when I make assumptions about other people’s lives. So if I’ve learned anything from having a number of long term illnesses, it’s never to assume. You really don’t have the number of someone until you walk a mile in their shoes. The likelihood is there’s people out there with worse problems than you and me. Kindness should always be your go to option.

Mum guilt and chocolate teapots

March 15, 2019 — Leave a comment

Mum guilt, if you’re a mum, you’ve had mum guilt at some point. You may even have it regularly – let’s be real about this, it’s a thing that has blown up in recent years because we (I, in any case) spend far too much time comparing ourselves to other mum’s on social media, at the school gates, during a PTA, at soft play or on someone’s follow Friday post.

A friend of mine called me earlier this week to say she’d been called into school about her child’s behaviour. They were acting out and she felt tremendously guilty. She felt like she’d failed as a mother. Let me be clear here, she is a bloody fantastic mother, but seriously, she tore herself a new one over this. I went away and thought about the times I’ve been criticised or not even criticised as such, but spoken to about Ciara’s tantrums and or her lack of sharing and I’ve felt like the worst person on the planet. I’ve gone on social media to make myself feel better and been faced with everyone gushing about their perfect kids or at least that’s what I’ve taken from it and ended up feeling worse. I’ve been penalised for being ‘real’ for admitting when my child acts like a knob. People have said ‘no wonder if you call your child a knob, they’ll act like one.’ FYI I don’t sit there calling my three year old a knob to her face, but sometimes people, she acts like a spawn of Satan, so she gets the finger when she’s not looking, and sometimes….. she’s cute and shit. If you complain about your child’s behaviour or chastise them, you are branded an awful mother, and if you don’t, you are still an awful mother as you must not even notice or worse, don’t care!

It’s funny because when I thought about this in more depth I thought about our mothers and grandmothers. There weren’t parenting books and baby led weaning, or the Ferber Method. There also weren’t tens of thousands of mums on social media talking about being one. (I’m aware I’m that person too) What I’m getting at is, they had nothing to compare it to accept real life experiences from friends and family. There was hardly even any reality TV when I was a kid. None of this teen mum stuff or one born every minute (which I love by the way) but we all sit there and have a little ‘ooh I wouldn’t of done it like that’ moment when watching. Don’t get me wrong, there are just as many mums taking a stand against mum shaming on social media as there are ‘perfect’ parents, but where does this end.

If your kid acts up these days it’s because they have something wrong with them, or there’s something wrong with you, or you’re neglecting them, smothering them, missing something, and so on!

This is a time when if you kiss your child on the lips and photograph it, you’re branded a paedophile. Has the world gone absolutely bat shit?

My mum always gave me a big smacker before bed, she wasn’t/isn’t a paedophile. The only difference is, back then she didn’t photograph it and post it on social media. We seldom take pictures of our babies cute little bums or let them waltz around starkers because let’s face it, there are some sick people in the world and we’re quite rightly protecting our kids, I wouldn’t ever condone anything that put them at risk, but come the fuck on people, can you not give your child a kiss or a cuddle in public anymore? Loving your child and showing affection in a positive way does not make you a monster.

My daughter doesn’t eat any veg, or fruit, accept in the form of juice. We have tried EVERYTHING! Her eating has gotten worse the older she’s got and it’s a real fight in our house some nights to get her to eat pizza and chips, let alone home made vegetable ragu. I can assure you, it’s not for lack of effort on our part as parents, whether you believe my assurances is another matter.

When Ciara’s tired and in an ‘I want Daddy only’ mood – I wonder to myself if this is because I’m a terrible mother. Does she hate me? What am I doing wrong?

When she forgets to use her ‘kind hands’ at preschool I wonder why it’s my child that plays up, what did I do?

I know I’ll go away after this post feeling liberated for all of five minutes for the rant I’ve allowed myself, and then I’ll get back to wondering why I can’t do better or be better. Why nobody looks at me as an idol, why I’m not up on a pedestal of perfect parenting.

BUT when I look at my daughter each day and see her happy and healthy little face, when she randomly comes and plants a kiss on my cheek or puts her little hand in mine, I’m going to try and see myself from her perspective. I’m going to try and love myself a little more how she loves me, and I’m going to give myself a pat on the back for every day we finish a meal, every time I refrain from referring to her as a little knob, and every time she’s kind. Fuck it I may even get myself a reward chart because I am a good mum. Deep down I know this because my perfect girl is so loved, and guilt, guilt is an emotion I render as useless as a chocolate teapot.