Confessions of a chronically ill mum #5

The difference two weeks make when you’re living your life around hormones, pain, kids and food…

Ok so some context, last week I was so irrational and some days inconsolable. I cried relentlessly and burst into a tearful rage when my husband told me roofers were coming to do some work on our roof.

I’ll go as far as confessing my embarrassment when I attended group therapy Friday and had to partake in an exercise. It went like this.. 
Group facilitator: Name a situation this week whereby you haven’t been able to contain your emotions. 
Me: My husband told me the roofers were coming and I don’t want them there, making noise, antagonising the dog, leaving their shit all over my driveway, waking the baby up with their clanking, etc etc etc. 
Group facilitator: Ok now strip away your interpretation and just give us the facts. What was the situation?
Me: My husband told me the roofers were coming. 

I can laugh about it now, because I realise how pathetic it is to get so emotional and behave so irrationally over something rather minor. However, to me and my perception, all I could think of was them invading my safe space and my peace, and my feelings felt really valid at the time. I know my hormones and the way I am living my life around them at the moment isn’t sustainable. My daily tracker consists of days feeling angry/anxious/flat/tearful to severe itchy skin/insomnia/nightsweats/cramps/bloating and more. But even with these hellish symptoms, likely as a result of taking progesterone, I’ll still take them over feeling suicidal every month and having migraine attacks that last a week at a time. Weighing it up with pros and cons isn’t the right thing for me to do, because in all honesty I have to accept that I will live with moderate to severe symptoms probably indefinitely, whilst praying that their severity is less.

In the last two weeks Ciara has been poorly, emotional and generally not herself. In the last few days she has perked up again and this brings me joy, I really struggle to regulate my own emotions when the kids are ill and I know they need me to master this better. For some reason I just seem to retain so much anxiety when one of them is not their usual selves. Kaiser has started flying around on his knees faster than our old Seat Leon, and climbing the walls quite literally, but still rarely sleeping. I’ve also spent a night alone in the house with Kaiser that I was petrified of doing, eradicated lots of foods from my diet and lost 6lbs despite the cravings those hazardous hormones bring! So it’s not been all bad.

It’s also noteworthy that whilst some symptoms have been tolerable, fibro fatigue and brain fog has been much worse, though physical pain in the more manageable stakes. We’ve gotten out and seen friends we’ve not seen for ages. I’ve all but organised everything for Ciara’s birthday party, and…life goes on. It’s up and down and yoyo’s persistently but some of it, is ‘just life’ I guess, and not everything is a catastrophe, as much as my brain would like to convince me otherwise!

Next week I have my first appointment with the diabetes team postpartum, and also an appointment with cardiology. Alongside these I have to collect my new laptop for my imminent return to work and arrange for Kaiser to meet his childminder. It’s all go for sure, but it’s not all bad. Shaun and I have a night off this weekend, his parents are having both children so we can lie in bed all day and binge watch all the TV we started the last time we didn’t have the kids home which was January!

Life is good and then it isn’t, it’s awful followed by magnificent, excruciating and liberating all at once. So far this week, I’m grateful for small wins, play dates, family and friendship.

Ps. The roofers haven’t even turned up yet!

Another new year

Last year I wrote a post titled Unhappy New Year and in short it was about what a shit show 2020 had been for us all. At the end of the blog I gave myself some small resolutions, to be less judgemental and apply less blame, find the positives etc. It wasn’t until I read back over the post that I realised I have achieved most of them. I think my mindset is definitely different these days. Whilst I won’t pretend I’m Lady Optimistic I am more optimistic than the me of previous years. I’m also, so much more self aware. Aware in general. I have therapy to thank for most of these changes.

The first half of 2021 was awful for us. Worse than 2020, tenfold. With me being in a wheelchair, trying to homeschool and work from home, a baby on the way that I wasn’t managing to care for as I’d hoped, gestational diabetes along with other complications made me so unwell. It all felt as though I was on a rapid decline. As Kaiser’s due date neared, my mental health worsened. Most of you know what happened next, but in case you don’t, I was hospitalised and my labour induced after psychiatric evaluation. It was decided that for the sake of my mental health and the health of our baby, he needed to be born.

I’m six months postpartum now and on my road to recovery of perinatal mental illness. I’m working hard to regain my mobility, manage my chronic illnesses, care for a newborn, and five year old, keep house and balance my hormones, oh and avoid covid, there have been many, many, bumps.

However, I believe despite the awful ordeals we have faced, the fact everyone in the house contracted covid over Christmas resulting in a real scare with Kaiser (currently all still positive and feeling really quite bad) as well as living with perpetual lack of sleep, we’ve smashed 2021. As a family we have worked harder than ever, there are broken pieces where we were once whole, and there have been rivers cried too. Our marriage has taken a hit, and parenting two children instead of one has been a huge change for us. But, having weekly therapy, finding a decent medication combination, owning my shit, being brave, digging deep, along with all that mindful bollocks previously discarded as useless information I’ll never need has been put to great, life changing use.

I don’t believe I made it through 2021 on luck or a wing and a prayer. No, I made it through this year with sheer determination, love, and hard mental graft.

Two days ago I was back in the hospital I birthed Kaiser in. I’ve been there only once since I had him, and that was recently to find out I had a tumour (benign) in my left breast. During that appointment I had my mum holding my hand. The second time was two nights ago, alone, with a baby who’d just tested positive for covid along with a husband at home who’d also tested positive so couldn’t be there to support me and our son.

I sat in the hospital room and cried alone, whilst the nurse told me my baby would need oxygen. I cried again when his levels were back up and we were told we could go home.

I’m still suffering anxiety six months postnatal, but most of the time it’s in response to ‘normal’ anxiety provoking situations, like hospitals and poor health. The rest of the time I’m using the tools it’s taken me six months to master, to manage it. I’m trying to show myself compassion and I’m working really fucking hard on gratitude too.

As I write this late at night after finally getting my kids to sleep, oscillating between shivering and sweating buckets with a fever. I decided to think about whether I have any resolutions for 2022, and the truth is I do, but my main and most important one is, I plan to continue to heal. For myself, and for my family. My kids deserve a mum who isn’t falling apart at the seams, and I deserve the love and care I so readily give to others.

If I could give my readers any advice for the new year, it would be that you treat yourself with more kindness.

Ok so I’ll throw in a few more for good measure… here goes

  • Love the people who treat you well
  • Have empathy for the ones that don’t (unless they’re just c*nts, then fuck them) but try the empathy first. It might surprise you.
  • Stay in your own lane. Comparison is the thief of joy.
  • Tell people you love them, tell them often.
  • Stay in the present, if it’s not happening right now, it’s not happening.
  • Get more fresh air.
  • You don’t need permission to rest.
  • Don’t look back, unless it’s to see how far you’ve come.
HAPPY NEW YEAR FROM ME AND MINE TO YOU AND YOURS XOXO

Mum Guilt

I think I’ve definitely titled a previous blog mum guilt but I’m doing another one because these last weeks I’ve felt it. In the 4 and a half years I’ve been a parent I’d say it’s only the last year that I’ve managed to keep a tighter lid on the guilt. This is because most of the time, I know I’m doing my best and that has to be enough, doesn’t it?However every so often imposter syndrome will strike and I’ll have a wobble and feel like a shit mum. That happened last week. You may have read somewhere on my socials that I’ve been ill again (rolls eyes.) It’s been bad, I had a UTI that had me feverish for 8 days and kicked off a PEM flare like never before. On top of my day to day fibro symptoms and hormone fluctuations I have been sleeping the days away and Ciara my daughter, made a few comments about when I would be better. She said she was fed up because I’d been unwell since Halloween! She also said she had been wishing in her dreams for me to get better. It hurt my heart, because I try really hard to make an effort to be present in her life even when I’m feeling unwell, we do movie afternoons in my bed and make dens on the bedroom floor so she can feel close to me even when I’m laid up. Then I try desperately to make up for the flare days on the good days and we cram in activities when we can.

I have had to rely on my husband and my mum to do many of the school runs and activities these past weeks, so I’ve been feeling pretty redundant and guilty in return. Of course not everybody is in a position to lean on family for support and I know how lucky I am to have that option. With recent lockdowns and tier restrictions we’ve had those taken away from us somewhat and there are less people to lean on for support now, the bubble getting smaller. It feels as though I’m going backwards to the early days of parenthood where I felt like I was letting her down because I didn’t breast feed and I couldn’t establish a routine with a baby that screamed 15 hours a day. She woke up the other night after having a bad dream, thankfully a rare occurrence, but when I questioned her about it she said her dream was of me being cross. This really upset me because despite my constant state of being pissed off, it’s so rare for me to get cross with Ciara and that’s not a ploy to get you onside, it’s the truth. She is so rarely naughty she doesn’t have a lot of tellings off, but I have been more stressed than usual recently, and I’ve done some shouting at Shaun. I forget that she hears and understands everything now, she takes it all in. I don’t want her childhood memories to be of me in bed or me shouting at daddy but I feel powerless to prevent either somedays.

So whilst berating myself relentlessly about all the things I’m doing wrong I tried to tell myself that I also do a lot right. Shaun reminded me that Ciara remembers Halloween because I threw her a party and picnic with one of her friends. He reminded me how I never forget to be creative and go all out for school dress down days and elf of the shelf adventures. He reminded me that I never break promises and I don’t give her false hope and that whilst she is complaining about my being sick, it’s only because she wants more fun with mum.

I talked to a few of my friends that are mums recently to find out if they felt the same and they all said yes. They all said that this year has seen their patience wear thinner than ever, their ability to juggle the work/life/parenting quagmire has suffered and lines have been blurred. Self isolation and working from home with kids has seen to many mum meltdowns. One of my friends actually said to me: What would you say to me if I were you, Steph? Would you tell me I’m a shit mum for being unwell or losing my rag occasionally? And of course the answer is, no, I wouldn’t.

I feel like guilt is something we have to live with throughout our lives whether or not we’re parents, but as parents, every decision we make for our kids is based on assumption and guess work. There is never a right or wrong answer when parenting. There is consideration and gut instincts and pros and cons, but that’s pretty much it. I’ve said it before and I’ll say it again, there’s no handbook, there’s winging it, and there’s doing your best, do plenty of both, and you’re probably doing ok.

With Christmas comes a lot of pressure. In the world of parent bloggers there’s a whole heap of posts just waiting to press your mum guilt buttons, and there was a time when I would compare my parenting to perfect Instagram pictures on other mum accounts, but not anymore. I’ll keep it real and tell you, I still compare myself sometimes, how I look and what I’ve achieved, but I never compare my parenting, because I know that being a mum is as unique to me as my fingerprint. We all have morals, traditions and family values and they’re never the same as someone else’s. So if you too are feeling a bit overwhelmed with guilt, just remember you’re not alone and you’re not a shit mum! My mum once said to me that shit mum’s don’t worry about being shit, they just are, but good mums always worry about being good enough. How true is that!?

Your best is enough.