living well

To the you that feels too much.

November 9, 2020 — 5 Comments

Some days if not many, I feel like life is too much for me.

Too problematic

Too demanding

Too stressful

Too hard

Too expensive 

Too ominous

So I had a think about how I can break it down, because in all honesty I am all too often feeling as though I am one meltdown away from a psychotic break, and that isn’t a healthy way to live.

That’s when I realised problems are unavoidable, but I have the power to stop reacting to them and start tackling them with a clearer head. 

Most of the demands I speak of, I put upon myself. I am not able to meet the unrealistic expectations of my own making. However I am able to lower my expectation all together and treat myself with more kindness. Celebrate the small successes and work a little harder to focus on a solution based outlook.

Stress is part of life, but it doesn’t have to be the soul dictator of mine. The only reason it sinks it’s claws deep into my psyche is because I feed it with my adrenaline fuelled responses. I am highly sensitive and I am emotive but I don’t have to let my overriding emotion be stress.

Life is hard. It can be. It is. Though treating myself with disscontempt seems to come easy. Why is that? What can I do to change how I view situations? Could I perhaps allow myself more time to process difficulties? I think considering the amount of time I spend feeling like I’m climbing Ben Nevis it’s possible there’s room for improvement on my processing techniques.

Expenditure is essential to the cost of living, but it doesn’t have to be essential to my happiness. Material things are not that important to me so why do I always feel like I am missing out when I can’t afford stuff? Maybe because I spend too long comparing myself to my peers instead of accepting like our thoughts, opinions and lifestyles, our budgets are different.

I don’t believe a positive outlook will automatically grant you a positive life. What I have learned over time is the people I have come across with bigger problems than my own, people facing harder challenges and worse health, all seem to be more optimistic than I am. So maybe, I’ll try and count my blessings more often and throw away the curse that is negativity. I gain nothing from it and it gains everything from me.

My whole life I have felt as though I am too much for some people. It has taken me 30 (and then some) years to accept, they are just not my people. I’ve been battling with the ‘too’ instead of accepting just being me. It’ll come as no surprise to my family and friends that I feel this way because I’ve felt for a long time like I’ve been told I’m….

Too loud 

Too dramatic 

Too sensitive 

Too outspoken 

Too fiery

Too wild 

Too intense 

Too blunt 

If I had to describe myself now I would still use a few of the above words, but I would drop the too and I’d try and rephrase, because nobody has the right to tell me I am ‘too’ anything.

Yes as I mentioned, I am highly sensitive, but that makes way for empathy, for compassion. I care, not too much, there is no too much. I am caring, and that is something the world needs more of. It’s ok to care. In fact it’s good, until it isn’t, and you care too much about what other people think. I don’t want to do that anymore. 

Yes I am fiery, but only when it comes to things I believe in, I am passionate and I am driven by things that excite me. They are not the same things that excited me 10 years ago. Now I am excited by books, and words, and art. I’m excited by flavours and food and Sundays in bed. Safely replacing 10 jägers and a scrap outside the kebab shop. I’m excited AF when my daughter comes home with a bronze star or shares her sweets with her little best mate.

I am blunt, because I can’t fake anything. It’s funny really that I’ve been coined a ‘drama queen’ because my acting skills are fucking awful. My face will say everything my mouth forgets. If anything, I might be ‘too’ honest, but only because I genuinely believe honesty is always the best policy, and my sensitivity, believe it or not actually makes me quite a good judge of character. I don’t have the time, and I DEFINITELY ain’t got the energy to pretend. 

I WAS wild, now I am about as far from wild as a candle flickering into winter giving off vague scents of unwashed hair and 2 day old pyjamas. I am the opposite of wild, providing the opposite is not chilled. No, I’m not chilled, because I worry. I worry because I care. I want to be better. I want people to see me for the better person I am because I deserve that. Are you still with me?

I am still intense, because once I start speaking I really spill my guts. My opinions are emotive, and I have no façade. I do not hide myself behind pretence. I am intensely vulnerable and I am open. 

This can be a blessing and a curse. I overshare, but I also over love. I know if I was advising a friend on these qualities I would tell them both are ok.  

I am a complex mass of physical pain and panic. Of memories I’d rather forget and a future I’m desperate to control. To panic is to care. To be aware of your faults isn’t heroic or admirable, not really, but owning them and trying to fine tune them takes effort. And effort itself is admirable. 

I have had struggles, but they are not worse or more severe than those of others, they are just mine, they are part of me. They shape me, and I have no doubt. Not one speck of doubt, that I am a better person because of them. 

I am not too much. 

I’m just me.

You can also read this blog here at House 21

A Decade Of Lessons

December 28, 2019 — Leave a comment

The last 10 years

Well, it’s been a testing decade that’s for sure, but it’s also been the most amazing pilgrimage of self discovery I’ve ever been on.

I feel like the last decade is where I really became an adult and anything before was part of my youth.

In 2010 I was glassed in a nightclub in an unprovoked attack whilst out with friends, and it shook me beyond measure and took me to a place I didn’t know existed. I’d been in fights before, been given a slap when I probably deserved it, in my teens, I’d even (believe it or not) been hit with a bottle before, but it hadn’t shattered the first time and this was on another level. This was in response to me just being out having a laugh with friends, and it could have left me blind. Thankfully, physically most of the scars are on my décolletage and not my face (though I do have a dent in my skull) it could have been a lot worse physically.

But despite keeping up appearances, mentally I was scarred beyond recognition. I was scared too just by the weight of the attack, but in being scared I got angry.

I went ‘mad’ for want of a better word. I was wild. Following that night every time I went out I braced myself for a row and alcohol only fuelled that self destruction. I got in more rows and fights than I’d ever had before. I rowed and physically fought with my then partner, and when I ended that relationship I continued down a rabbit hole of hell.

I did some messed up things and 2013 saw the catalyst to that phase of crazy.

I lost my job, almost my house, and I was alone. Friends had given me a wide berth and my nights out were spent with people I didn’t even really like and who only hung out with me for some drama or entertainment.

I’ve always had a need to fill the shoes of the life and soul of the party, but I’ve filled them by acting like a fool. Being the loudest, the craziest and the wildest person in the room.

I met my now partner at the end of that year. I saw the new year in in Ireland with a good friend and it was like something just clicked, an epiphany if you like, and I didn’t want to be that self destructive, unemployed mess, that I had become.

I got a job, a pretty good one, and from there life has progressed at a steady pace. The following year I was shaving my hair off for charity and raising thousands of pounds. I’ve had some backslides, like being diagnosed with Fibromyalgia and it’s affect on my both my physical and mental health. Having a baby wasn’t an easy feat for me, and it can be hard work just being ‘normal’ most days, but I’m surviving it, and thriving too.

Last year my mum nearly died from a freak fall and I can say with certainty, I’ve never been as scared as I was then. It puts what’s important into perspective.

Nowadays I don’t feel like I’m falling from Beachy Head every time I wake up. I don’t want to hide for a week after a night out anymore, and I don’t wish I was dead. Even on the bad days, I’m glad to be alive.

I still feel like some days I fight stigmas and a bad reputation, but it took me a long time to make it, so I guess it’s only normal that it will take me a long while to break it, too.

That being said, my future is bright and I’m lucky. All the people in my life are in it because they want to be and contribute in some way to helping me be and feel better. So I’d say, despite all of that drama, this past decade has been pretty spectacular and I’m looking forward to the next one. Taking nothing for granted is my only resolution.

Happy new year 🥳

Just another chronic illness blog

December 21, 2019 — 2 Comments

When I got diagnosed with a chronic illness I didn’t get the same quota that you get when you’re told you have pneumonia or you break your leg. I didn’t get ‘get well soon’ cards or flowers – which I guess is a good thing as get well soon doesn’t really exist in the chronically ill community. But we still appreciate the sentiments.

I don’t get much love for my illness, I get eye rolls and people annoyed at me talking about it again, but I don’t get much love.

I get people accusing me of using it as an excuse and comparing me to people with the same problems. But not love.

I get disbelieving shakes of the head and funny looks when pulling into a disabled parking space, but not love.

I get people telling me to be positive and exercise more but I don’t get presents or hugs.

Imagine waking up one day and not being able to get out of bed, yesterday you could of ran for the bus, but today you can’t move. Now imagine feeling too ashamed to talk about it for fear of being dismissed, accused of faking, or mocked. Because that’s what living with chronic illness is. That’s what happens when people can’t see your pain. They assume it doesn’t exist or that you’re making it out to be much worse than it is.

Even your friends think you’re exaggerating, and even your family get fed up when it encroaches on plans with them yet again. When I tell people I have to pace myself or I’m not feeling too good, I literally brace myself for their reaction. Nobody ever says, it must be so hard, I admire your strength.

That’s why I write it down, and that’s why I share it on the internet with people whom I’ve never met. Because some of those people get it and they aren’t (at least not visibly) rolling their eyes at yet another post. People are happy to offer you their support for the occasional bout of misfortune, but when it‘s ongoing nobody wants to get dragged down with it. I get it! I really do, I’m a realist, I know it’s hard for people to understand, and it can be miserable to hear about, but imagine living with it.

Imagine just for a minute that it’s you who’s sick all the time. Then imagine feeling like nobody cares. Feeling like you’re burdening people whenever you talk about it, feeling guilty for being sick, imagine how lonely that gets.

Everyone has their own battles and some people have it much worse than you or I, that’s a fact. Some people have the same illness on a different level and some people have diseases that are killing them.

What living with a chronic illness has taught me is not to make assumptions on people’s lives, to believe people when they tell you they’re suffering, and to remember to check in on your friends. Pain changes people, in different ways, sometimes it’s empowering and when you’re on top of it you feel like you’re winning, other times it’s dark and makes you wonder what’s the point of living at all if this is how you’re destined to feel everyday. It’s overwhelming and hard to explain – but by sharing my experiences with it I’m remaining sane. I’m not hiding and so that is the reason behind yet another chronic illness post. If you know, you know. 💜

View this post published on The Mighty here.

https://themighty.com/2020/01/when-people-cant-see-your-chronic-illness/?utm_source=engagement_bar&utm_medium=link&utm_campaign=story_page.engagement_bar/

Forgetting your illness

December 10, 2019 — Leave a comment

Things are good, you’ve had low impacting symptoms for a while and you’re starting to remember your pre-diagnosis life. Surviving quite happily on a steady dose of painkillers and enjoying the festive fun.

Not so fast pal!

Cue a poorly child you’re responsible for nursing back to good health, a weather change, or maybe an allergic reaction to some costume jewellery. Could it maybe you’ve done a little more walking than you usually do, or a long drive? – and bang!

Hey chronic illness, long time no see.

Now there’s no need to pretend like all the above things haven’t been thoroughly enjoyable, because if it wasn’t for those things you would have been sure to shrivel up and die of sadness, but when a flare up occurs it can be completely life limiting, and that’s why it’s called an invisible illness, because you don’t see it coming.

It’s December and Christmas cheer is everywhere. You’re getting right into the spirit of it and so you should, but then you catch that cold your daughter came home from preschool last week with, and it’s downhill from here.

I wanted to write a bit about how it feels to have a ‘just a cold‘ whilst fighting a chronic illness and what catching viruses does to our already weakened immune system.

Of course at first it starts like any other common cold and you get a sniffle or a bit of a sore throat. Then the pain from your congested sinuses trigger a migraine and the onslaught of nausea that follows makes you feel weak and shaky – for days!

Once that’s passed, the aching from the flu like symptoms, makes your already weary joints feel like they’ve been battered with a hammer, every single bone in your body feels bruised and your skin is sore to the touch. The raging temperature you’ve acquired messes with your already shot internal thermostat, and you constantly flit between grabbing extra layers and peeling sweat covered ones from your limbs. After you’ve done that a few times the fatigue completely floors you, and you have to close your eyes. Which is a bit of a problem when you’re sat at your desk or the school run needs doing.

What is just a sniffle to the average Joe can disable someone with an already weakened immune system and if you see them feeling a bit sorry for themselves try and refrain from telling them to man up. You can’t see the fight they’re fighting but underneath the snot their body feels like they’re in the ring with Ali. Don’t make an assumption that because people look well means they aren’t battling, they may well be trying harder to conceal it.

It’s so important to pace yourself when you suffer from a chronic condition but it’s also really difficult when you’re feeling well to remember to do this, and not get down about missing out on fun stuff. Suffice to say I didn’t pace myself all too well this time around and now I’m paying for it.

I’ve tried really hard to fight through the tougher days lately too, and I’ve done so with not much back lash, however the start of this flare up is swiftly reminding me that actually I need to slow down. So this is my reminder to you, be kinder to yourself and anyone you know who has an invisible illness – the winter struggle is real for us all, but it’s even harder for them.

No cure

October 10, 2019 — Leave a comment

Yesterday I had my first sick day in my new job. I’ve been there under 3 months. And until now, so far so good, been taking breaks on my days off, getting enough rest whilst still having a life, looking after myself, taking my medication. Then yesterday I woke at 3am feeling nauseous and it wouldn’t go away. It was bad I couldn’t sleep. I text my supervisor in the morning to say I wouldn’t be in and spent the rest of the day in bed with a full blown migraine. You know the ones where even your phone is too bright and your guts feel like they’re falling out of your asshole?

I’m home today too, the headache has subsided but the sickness is still there, I still feel weak and unwell and generally crap about myself.

You see the thing is, back in July I had a daith piercing and I was convinced it would cure my migraines. So to learn it hasn’t has really fucked me off. I also feel shit about being home. There’s no cure for migraine, just like there’s no cure for Fibromyalgia or PMDD and I have those too, but I feel terribly guilty about it. Because I’m not a skiver, I’m not a lazy bitch (unless I have a hangover) and I genuinely feel awful when I let people down.

When I first got diagnosed it was a relief, I had loads of text messages and social media likes, telling me how relieved I must be to know I’m not going mad. I was!

I had loads of sympathy messages too, but they have a shelf life. And when you have something that can’t be cured people get bored. They don’t understand why you’re still going on about being ill all the time. Everyone knows, you don’t need to keep banging on about it.

But I do need to. I need to because that’s the only way aside from the world all contracting the same illness, that people understand. It’s the only way to spread awareness and helpful tips. It’s the way I feel most comfortable explaining it and so that is why I ‘make such a big deal out of it‘ it’s not for the sympathy as let’s be honest that shit dried up years ago. It’s not because I’m craving those text messages that don’t often come anymore, it’s because they are diseases that nobody ‘gets’ nobody really believes.

“You said you have a migraine but really it’s just a headache, here, take some asprin”

“So and so has fibro and she doesn’t go on about it all the time, she still works, she doesn’t even take medication”

“Yeah I believe she has it, but she definitely plays on it”

“It’s just a period every woman has them, stop moaning”

If you suffered migraine you would know an asprin is about as useful as a cock flavoured lollipop, once an attack has started. If you had fibromyalgia you would know it differs in intensity depending on a whole world of factors, even down to the weather! And if you had PMDD you would know that before your period comes there’s a good chance you may have considered the fact you’ve lost your fucking mind and begged your doctor to section you only to feel ‘normal’ again when aunty Flo pops in. If your mum had it and couldn’t work, or your sister, or your best friend would you say that about them too?

Anyway – the point of this post was more for me than you, the reader. It was more about assuaging my own guilt, because guilt is an emotion that the chronically ill can’t escape. I feel guilty that Shaun had to cook his own dinner after he’d been at work all day yesterday. I feel guilty that Ciara had yet another sleep over at nanny’s because I knew I wouldn’t be able to get up and see her off to school this morning because the medication I took last night meant it probably wouldn’t of been safe for me to drive, that’s if I even heard my alarm. I feel guilty for looking at my phone when I should be resting. I feel guilty for having a life on all of the other days because if I didn’t I might not feel this shit today. Guilty Schmuilty. It’s shit. It doesn’t matter how many well wishes people send, how many ‘you can’t help being sick’s’ I hear, I still feel guilty. I know I will always feel guilty until I get to a stage where maybe one day there is a cure, or maybe there’s something I haven’t tried that will help me manage better. I feel guilty for letting my family down on days when I’m bed bound. I feel guilty for letting my lovely new colleagues down on days I can’t work. I feel guilty for saying when I feel ill. I feel guilty for cancelling a night out or a meet up. But most of all I feel guilty when I make assumptions about other people’s lives. So if I’ve learned anything from having a number of long term illnesses, it’s never to assume. You really don’t have the number of someone until you walk a mile in their shoes. The likelihood is there’s people out there with worse problems than you and me. Kindness should always be your go to option.

Mindfulness

May 14, 2019 — Leave a comment

As a rule I’m not very good at mindfulness. I don’t practise it anywhere near as often as I should. I know it’s proven to work for millions of people and I am trying to warm to it, but I’ve always been a bit skeptical assuming it borders on hippyish and that’s just not me.

However I realise now I’m wrong and actually it can be as simple as getting outside for ten minutes a day and taking stock.

Today I sat by the river working on my novel and applying for yet more jobs. Feeling absolutely exhausted with corporate bollocks and rejection. I’ve been attending interviews like it’s my full time job and I’m starting to take the knock backs personally.

If you know me, you’ll know I take everything to heart and have a real complex around rejection. I decided instead to try and be rational. Give myself some time to take in the beauty of today. I know it sounds über cheesy and it’s not what you think. I don’t chant mantras or meditate (not that there’s anything wrong with those things, it’s just not very me) instead I just sat watching the river, listening to the running water of the weir and gave myself a bit of a pep talk. I always try and be thankful for the big and small things in my life. Like I have a roof over my head, a beautiful family, we don’t live on the bread line (even if we are always skint) and it was important for me to remind myself of these things today. I am a professional, I will find a job that suits me soon, it’s just taking longer than I anticipated but that’s ok.

Mindfulness is about being present, focusing on your surroundings and calmly accepting your feelings. So that’s what I did and I felt all the better for it! I was only sat there an hour, it gave me just enough time to write a synopsis and edit my copy to 3000 words. It was also enough time to feel like I’d had a break, got outdoors, took in the fresh air and got a bit of ‘me’ time in. The sunshine helps and maybe I wouldn’t of made the effort to be mindful if I’d been stuck indoors, but I plan to, going forward to get in a few minutes of mindfulness everyday.

Living my best life with fibromyalgia.

March 10, 2019 — Leave a comment

Cough, I know you’re thinking Jesus, Steph has finally decided to get out of her funk and help herself.

Not really, I don’t know, maybe I’ve just been lucky. Since I left my job my health has improved tenfold. I believe this to be because I have more time to rest when I need to, but it could be due to a lot of factors, or it could just be good old coincidence.

Mentally, I am stronger than I have been for some time. I’m off of antidepressants for the first time in years, and I’m not feeling constant impending doom. This is a really big deal for me, and I’m feeling positive about the next chapter.

But it’s not all cupcakes and rainbows (yes that was a Trolls quote) Pain has got a lot to do with mood, low mood can exacerbate pain. Especially when suffering with a condition that effects your central nervous system, as that’s when it’s on high alert. Psychological pain can bring on physiological symptoms. I’m not a doctor, but I have spent a lot of time researching my condition. I’m not going to sit here and spout that positivity cures illnesses as that’s untrue and offensive, but when you feel happy it makes pain more manageable. That much I do know.

Today I woke up earlier than usual due to Ciara’s new found love for 6am. I felt terrible, my body was heavy and I can feel pain deep inside each joint. This is not imaginary, this is real pain, and I’ve had to take some heavy duty painkillers to combat it today. Despite being in very real pain today, I feel good. Good, because I’ve had a decent run of late, without this kind of debilitating pain. I’ve had pain, but the kind of pain I’m in today, is what reminds me I have a disability. In short, it sucks.

However moving on to the positive bits again. I’ve been doing little things that make me feel better. Small things like, having a tidy living space, getting enough sleep (when I can and Shaun’s snoring allows) but generally doing things that make me feel good. Avoiding toxic people, not analysing every little thing, not comparing myself to everyone, and trying to accept my pain without beating myself up. All these little things help. They aren’t a cure but they do make a difference. I went through such a battle with myself to accept this illness without it breaking me. To allow myself time since my formal diagnosis to grieve for the old me. I’ve spent two years grieving, and I still suffer! I won’t play it down, but I’m in a place now where I can accept it without it breaking me. I can move forward and still live a good life. I can have bad days but they aren’t all bad. Some of them are fucking brilliant!! You too can have good days again. It’s not going to be easy, but even without an illness or disability life isn’t easy.

But I have all my faith in you. You can do this, you can live your best life too. 💕