(Not) 2022 In Review

In keeping with a recent blog I wrote that had a very clear yet totally metaphoric ‘food’ theme. I wanted to continue the metaphor and write another blog in similar fashion, about my year.

I’ll start by saying, it’d be easy for me to write a tick box of the things I’ve achieved professionally in 2022.

Quit a job where the hours didn’t support the limitations of my disability ☑️

Published my first newspaper article and my first short story ☑️

Got nominated for a Mental Health Blogger award ☑️

Found a job that fuels my passions and hours I can work around my sick days☑️

But this isn’t LinkedIn and whilst these are great achievements, they’re the icing on the cake – not the cake itself. For me, the actual cake is all about the ingredients. The ingredients which I collected, gathered, thoughtfully and responsibly sourced and lovingly cooked up, once I realised what kind of cake my life had been lacking for, well…. ever!

Ok, let’s drop the metaphors for a moment. I think what I’m trying to to say is, for a long, long time, I was basing my value and happiness on the things I could do that weren’t limited by my health, both physical and mental. For example, I can’t run because of limited mobility, but telling people I was walking my way back to health just didn’t feel good enough. Spending a lot of time resting to avoid things that trigger my poor mental (and physical) health, well, it just doesn’t sound very productive. I always feel lacking in some way. I didn’t want to, and couldn’t, drink alcohol for most of 2022 because of medication, but saying I went for a really great breakfast date with my friend just felt lame amidst conversations of wild nights out and instaworthy excursions. I’ve seen friends so scarcely over the past year while watching everybody else, including my own mum, have a social life that would trump that of Kate Moss in her halcyon days.

I didn’t stick to regular baby groups or devote my time to the school’s PTA. I spent half of 2022 unable to even do the school run at all, because I couldn’t lift my son, and definitely not his pushchair out of the car on my own. Not least do both while holding my daughter’s hand. Instead of these things, I spent months trialling hormone replacements and cholesterol lowering medications, to lower my risk of both suicide and heart attack. And when the most exciting thing you did all year was stay overnight in a Mollies Diner with your six year old…. Well, it just doesn’t have the same ring to it as ‘I partied with my girlfriends on a hen do in Ibiza’ or ‘I took the family to Lapland for Christmas’ (Though Lapland is 100% on my bucket list)

That said, the ingredients I ended up finding and mixing for my own special 2022 cake, are worth sharing. They’re worth sharing because they’ve kept me alive, but not only that, they’ve actually made me pretty happy.

So here’s a list of that extra special ‘cake’ recipe I discovered during 2022.

Therapy is something I talk about a lot so won’t dwell on too much here… but it was previously something I had determinedly avoided really seeing through – that is until this year. I’ll say, one last time that I recommend everybody have a course of good quality therapy at least once in their lifetime. It really is life changing.

Liking myself was a close second in non negotiable ingredients for the perfect slice of life cake. Once I’d completed therapy and the shock of reliving past trauma had passed, I got serious about cutting myself some slack. All of the things I mentioned above that had me feeling lacking, were more a result of me just not really being okay with who I was and how my life had turned out. I didn’t do anything special to help like myself better, I just tried (and continue to try) to make sure that everything I do, I do with integrity. I’ve stopped doing things that leave me feeling bitter and agreeing to things I know I don’t really want to do. I could list many changes but the bottom line is self compassion.

Acceptance is the hardest one. It’s an ingredient I thought I would never be able to find and keep. I’ve spent a life time pretending I don’t care about situations I’ve been in, pretending to have accepted something unchangeable, but then remaining tightly wound and seething inside. Learning to really accept things for exactly as they are – is not easy, but once you master it – or in the case of the metaphorical cake – add a dash of it – it tastes great!

Quality time with the people I love. Real, meaningful, wholesome time. Conversations I’ll remember forever because I was present and listening. Being a reciprocating participant instead of being someone who shows up at surface level.

When I look back at this list of ‘ingredients’ I know that by following the ‘cooking guidelines’ consistently, that happiness can be found in a big ol’ slice of this cake.

🥳 Happy New Year 🥳

All I want for Christmas, is you.

What a year. I can’t believe that just six months ago I felt as though my world had imploded without any real warning. I woke up one day and didn’t feel like me anymore. I was afraid for my sanity, for my mobility, for my family and our future.
I couldn’t see past six hours without having a panic attack let alone six months.
I led in my bed, day in day out for 7 months, unable to walk.
As my son’s due date approached my mental health declined.
I felt consumed by all consuming, claustrophobic, fear. Wracked with perinatal anxiety.
I was broken.
I guess that’s why they call it a breakdown.
But here we are now, a family of four, surviving interminable routine and carnage, poor health and therapy, work and parenthood simultaneously.
Loving each other through it all.
It’s not been easy, it’s been hard getting here, ridiculously fucking hard in fact, but it has paid dividends to keep going.

I’ve got everything I need this Christmas. Genuinely. I feel so content with my family. When I say this I mean content as in they are enough, not content as in getting loads of sleep or life being perfect, unfortunately! Ha! I know how blessed I am, I’ve always known it, but I really feel it this year. After everything we’ve been through I have a desire to keep them close and let them know how much I love them. The only thing I want for the big day is more of that contentment (as well as good health & freedom for all, world peace too, but I’ll refrain from getting too ambitious.)

I am not the same old me I was last Christmas. Granted, I’m still a stressy, messy, bitch with a foul mouth who is always exhausted…. but I am also different. I’m softer round the edges. More vulnerable I guess, if that’s possible, but stronger too. I believe that what doesn’t kill us can leave us with a lot of unhealthy coping mechanisms, and I by no means, have ditched all mine. I haven’t turned into a preacher or someone who promotes their new lifestyle as some big epiphany, desperate for people to follow. But I am interested in change, in finding fun and contentment in new places. That makes me further away from those unhealthy coping mechanisms than I once was and I’m proud of that. I suppose what I’m trying to say is, I’m more open to learning better ways to survive and enjoy the mundane in the everyday.

I’m less inclined to sweat the small stuff whilst simultaneously being more interested in the big stuff.
My tolerance for a lot of things is greater, but less for small talk. I’ve always struggled with chatting aimlessly about the weather and the like, I’m too nosy, too inquisitive, I want to meet people and know them, not skirt around edges with hollow pleasantries. Similarly I’d rather be quizzed on my life than have it glossed over, skipped or ignored. I’m over hanging on to dead end relationships and chasing things that don’t bring me joy. Whether that be friendships that are more effort than fulfilment, or doing things I don’t enjoy anymore, for example forcing myself to be somewhere I don’t want to be. This year I have no desire for big boozy nights feigning Christmas cheer. I mean obviously the pandemic has some impact on those kinda outings, but I honestly think even without the plague, I’d still just want to be snuggled up close with my nearest and dearest.

Transitioning from one child to two has been a lot. I’m already anxious about how I’m going to cope with a baby that hates sleep whilst I’m trying to eat my turkey dinner. However, I’m ok with those kind of anxieties, they’re normal, they make me feel normal, whatever ‘normal’ is.
The biggest change of all for us this year is of course the fact we have an extra person round the tree to love. And love him we do. ❤️🎄

Subtle break-throughs

If you suffer from anxiety, or the feeling of impending doom and inexplicable terror that comes with panic attacks, the debilitating calamity that is intrusive thoughts, the unrelenting personality shift before your menstrual cycle because of PMDD? I hear you. I see you. I am you.

If you suffer from one or all of the mental illnesses mentioned above, you will know that logic is about as far away from fear as is possible. You may as well fly a rocket to Mars and you’d be no closer to logical thoughts during a panic attack. I’ve been having therapy for five months. The single longest stint I’ve ever managed to stick at anything relating to my mental health that doesn’t come in a blister pack. Full disclosure I take the pills too, I need them, but therapy is a different level of healing. It’s eye opening, confronting and real hard graft.

During these five months I have had breakdowns, many breakdowns. I have also experienced breakthroughs. These tend to be subtler, less outwardly monumental, but I can tell you from experience they are transcendent and quite awe-inspiring when you become aware of them.

I’m going to give you an example of one of my recent breakthroughs.

I am currently waiting for several hospital appointments, one of them may end up being quite life defining so it’s pretty important. With anything of importance for me, almost always comes anxiety. Throw in a self diagnosed terminal illness via Dr Google and we’re talking full blown life limiting panic attacks. But, not this time. I got my appointment letter a few days after the referral was made, though supposed to be seen within two weeks the NHS backlog means the clinic are running two weeks behind. Where as this kind of delay would usually lead to more panic, endless overthinking and probable sleepless nights, something has shifted in me and I feel different.

My logical brain has always known that there is little point in worrying about something that hasn’t happened yet, but regardless of my knowledge I have never been able to stop myself from said worry.

Worrying about tomorrow, steals today’s joy.

After going through what I have in the last five months, being scared of my own brain and constantly coming up against new challenges in trying to change the way I think, I decided right at the beginning of my recovery that I no longer wanted to live in fear. Of course simply not wanting something isn’t usually enough to stop it from happening. But with subtle changes and a keen desire to get better, engaging and working hard during therapy sessions and opening up fully to my mental health team, I have noticed a shift. I still feel anxiety around the appointment of course, but anxiety itself is a normal healthy human response. It only becomes problematic when it interferes with our everyday lives. And in this instance, relating to this appointment….I’m so happy to say it’s not doing that.

I don’t want to waste time worrying about an outcome that I cannot predict or influence. I don’t want to fear the worst only to find out when the time comes that it’s not the worst, then look back regretfully that I had wasted precious moments living in fear.

What if it isn’t a tiger in the long grass? What if it’s just a fluffy little kitten?

I won’t bullshit you, I know I’m not always going to be able to rationalise in this way. So many factors contribute to my own personal experience with anxiety and panic, that there will inevitably be times when I falter, and times when I fall. But what I’m doing right now, today, is I’m saying no to worrying about things that aren’t within my control. Isn’t anxiety itself a deep rooted need to control our fears and possible catastrophes?

How did I get here?

  • I took on board the offerings of tips my therapist suggested, such as grounding and breathing techniques and practised them even when I didn’t believe in them.
  • I reminded myself that if there’s a possibility that my world might fall apart, there’s also a possibility, it won’t.
  • I take prescribed medication religiously and stick with it for the recommended amount of time.
  • I’m trying, I say trying because I don’t always succeed, to implement healthier lifestyle changes, such as getting more exercise and eating healthier.
  • I write my feelings. It’s a personal favourite in helping me to process them.
  • I try to stay more in the present moment.
  • I have an amazing mental health team that I talk to regularly, even when I don’t think I have anything to say.

I know these things aren’t easy to do, I know this because it’s taken me twenty years to even begin to start really healing. But along with the above list, I also believe that celebrating small wins is a great way to remind ourselves that even when we are not where we want to be, we are further forward than we once were.

Me this week on a particularly bad day. Reminding myself it’s just a bad day not a bad life.
Also me this week on a better day

Acceptance isn’t linear

Entitled with contradictory statement maybe? Surely if you accept something, that’s it? Accepted, done, move on. Well….. I disagree.

The reason being is, take grief for example, you might accept someone is no longer physically on earth for you to love, but find it hard to accept the feelings that come with that knowledge. It’s not over just because you’ve said aloud you accept it. You can acknowledge a situation, tell yourself you accept it, and then change your mind. It’s not back tracking, it’s reality. You may start to accept one thing only to be faced with another, making your acceptance of the first, harder again.

I use grief as a prime example, Miranda Heart comedienne and Myalgic Encephalomyelitis sufferer recently said ‘With chronic illness comes a daily grief’ and nothing has ever rung truer with me.

I accepted my diagnoses a long time ago, because I’ve lived with symptoms for so long that there was no alternative to accepting their presence in my life. True and absolute. However, everyday brings with it it’s own challenge, every new symptom overshadowing my acceptance of the old ones.

With pregnancy too, because I’ve accepted I’m a person that doesn’t enjoy pregnancy, doesn’t cope well and doesn’t feel well throughout, but that acceptance doesn’t stop my grief. It doesn’t stop me wishing things were different or wanting to trade my body. You can accept and acknowledge a situation without enjoying it or thriving within it, and the goal posts can move.

I know during pregnancy my only goal is to get myself and my baby to the end in one piece, but once my son is here, the goal posts will move again and it will be back to getting through the days with chronic illness, because there is no end to them. There’s no one and only goal. Life is interchangeable and acceptance shifts. People tell me right now, that it will be worth it when my baby is here, like I don’t know that already, and they tell me to hang in there like it’s possible to do anything else.

They may or may not know, I have been hanging in there everyday for the last 5 years and more. Of course I get good days, though they seem fewer the older I become, but I don’t all of a sudden become well because I’ve had a good day. I don’t get to walk around with the knowledge that there’s only so long until better days are coming, because my good days can be equivocal to someone else’s worst.

I feel I can hardly shout this from the rooftops on a daily basis because then the few friends who have stuck with me would likely also tire of my complaints, so I have no choice but to accept my situation. Somedays I do it with grace and positivity and sometimes I do it reluctantly and with frustration.

When it comes to health of any kind I don’t think we ever agree to the offer. We look for a cure, we look for sustainable treatments and ways to better our situation. Never fully assenting to the offer of a diagnosis.

It’s true you can’t fully understand someone’s situation until you’ve walked in their shoes, and that also means what is easier to accept for one person may be harder for another. We can’t ever know how we’ll deal with something until it happens to us. We can’t ever fully accept a situation until it’s been lived in, and nobody can be blamed for that. It can’t be expected of any of us to accept everything someone else experiences but we can choose to accept their version. To believe them.

One thing I have learned about acceptance is, it looks different for everyone, including myself, for some occasions it brings peace and others it makes me want to fight back harder.

It’s not linear. It’s not complete and absolute. But it can be a starting point.