Anxiety: Mental Health Awareness Week 2023.

TW MH: ⚠️Let’s talk about this year’s Mental Health Awareness Week theme…. ANXIETY.

I had my first notable panic attack aged 13; and it changed the course of my life. I hadn’t realised all the things I’d been doing, seemingly small, but all the while, obsessive behaviours, that had embedded themselves into my life and daily routines since childhood.

Earlier that year I had taken an intentional overdose and by the end of the same year I was being homeschooled.

I moved to a new school but the anxiety continued. I had one friend, 🫶🏽 and the rest of the world thought I was nuts.

I only felt safe around my mum, and I was so terrified of something happening to her, that my relationship with her became fraught under the weight of my illness. This also coincided with me having such horrific menstrual periods to the point I would faint, and I was prescribed a cocktail of heavy duty drugs, including, a large dose of SNRI’s with a side of benzos by aged 14.

I didn’t like who I was and I didn’t understand the level of anxiety I was masking. In large because I didn’t have access to the tools required to understand or make changes, and being the only person I knew my age on antidepressants…. it was a lot.

Therapy didn’t work, because I wasn’t well or focused enough to engage.

If I felt threatened I would lash out. If I felt like I was going to be abandoned, I would act out irrationally in a bid to push people away, so I could ‘get ahead’ of their leaving. Basically, I was constantly trying to control the narrative of my life, and let me tell you, trying to constantly predict the unpredictable, is EXHAUSTING.

To this day, I live my life around a cycle of anxiety, but I understand it so much better now.

We all have anxiety. Anxiety is a normal reaction in the brain which occurs to protect us from a potential threat, but what happens when that threat isn’t there anymore?

A common analogy that a therapist once used to described anxiety to me, is like sensing a tiger in long grasses. We need our brains to cultivate a certain level of anxiety, to protect us, it’s in our genetic makeup to be alert to danger, but when we’ve established there’s no tiger, normality should resume. For those of us with long standing anxiety, or anxiety disorders, this often isn’t the case, and our brains become hyper-vigilant. This means we are on look out for the threat at all times, and our life can become very limited because of it.

There’s a lot we can do to reduce the level of anxiety we experience. Awareness of the debilitating ways in which it can show up in our lives is crucial. Because the reality is, we don’t all present in the same way. Not everybody who lives with anxiety will suffer panic attacks, some will have specific triggers or phobias that make them anxious, others’ may not know the cause of their anxiety.

I know myself that a lot of my anxiety stems from childhood and that any kind of hormonal fluctuation will exacerbate it’s effect.

There are also lots of services that provide support for those of us living with anxiety, which I will list below.

Anxiety UK offer both phone and text support for anybody experiencing anxiety.

No Panic offers advice, support, recovery programs and help for people living with phobias, OCD and any other anxiety-based disorders.

IAPT provide free short-term skills based therapy for those who are registered with a GP in England.

Mind is the UK’s largest Mental Health charity.

PANDAS provide free support to parents with mental health problems.

Chemical Menopause, for the treatment of PMDD: An Update.

⚠️ TW: Mental Health/ Premenstrual Dysphoria.

On the 20th April I had my 3rd Zoladex implant to treat PMDD.

I wrote another post earlier on my journey where I explain why I didn’t feel the implant was helping me. For the first two cycles I still ovulated and therefore had severe symptoms as I normally would.

There have been some changes. Not drastic or particularly miracle-like, but changes nonetheless. This time last month I was on holiday with my family, on my daughter’s birthday, crying in the dark of a painfully small caravan bedroom. I was in crisis.

It’s funny, (not really) that I use the term crisis every month, but when you’re considering walking out on your life, or ending it, I feel crisis to be an apt noun.

I also mention in my earlier blog, the feelings of shame which arrive with menses, leaving me to pick up the pieces of my life, again!

A clipping from my period tracker exactly one month ago.

Changes

Last week, after yet another email to my gynaecologist explaining that I’m still cycling, and him responding with it being ‘interesting’, I was feeling really disheartened, and as we’re here being honest, absolutely terrified! It’s usual for me to worry about how I’ll make it through another cycle, but when I’m using drastic measures, such as turning off my ovaries to reclaim my life, and I still feel like shit, the worry overspills.

After days of palpitations I was started experiencing the odd intrusive thought, and I knew it was coming. The darkness was about to descend and I did my absolute best to ward it off. I went for walks, even when I was so exhausted I felt as though I was being dragged. I forced myself not to shout at my kids when I felt overstimulated, and you know what happened? Nothing. The darkness is hovering like a fine fog, but it hasn’t yet descended. You know what’s so great about a fine fog? You can still see what’s in front of you.

I’m abso-fucking-lutely delighted to report that I feel alright, when I would normally be on the edge of my sanity. When I say alright I don’t mean without symptoms, but I do mean with so many less symptoms than I’d usually experience in PMDD.

There are of course still undesirable symptoms that come with chemical menopause, such as these wretched palpitations I keep referring to. I’ve also experienced an increase in migraine attacks which is pretty shit considering how well managed migraine has been for me since commencing HRT. Ovary pain has also been persistent and the usual joint pain with fatigue of fibromyalgia is still present. However, I’ll take the occasional attack and the constant thud-thudding of my heart, over the churning of negativity in my brain. I can cope with more brain fog, and even joint pain (if it’s possible for me to suffer with this more than I do already) if it means not questioning my own sanity, and finally being able to trust my own thoughts.

Review: Daisy May Cooper in Rain Dogs.

⚠️ Contains spoilers

A couple of weekends ago was my birthday and I was indulged by my husband with an overnight stay in a hotel room. The best bit about all of it was, I got to go alone! It was so good for my mental health to get that time away in the height of PMDD turmoil. To entertain myself, I switched on the 50” plasma TV and signed into BBC iPlayer (yes I have a TV license) to watch the much anticipated Rain Dogs.

You may or may not already know that I am a big Daisy May Cooper fan! I know This Country was what javelined her into the spotlight, however it was reading her autobiography Don’t Laugh, It’ll Only Encourage Her which really cemented my fandom. Swiftly followed by her exquisite script and performance in Am I Being Unreasonable? Co written and also starring actress Selin Hizli.

“Would you ever lie to me?”
~ Iris

“Yeah, course I would, I love ya”
~ Costello

Rain Dogs

Episode 1 sees Costello (Cooper) and Iris (Fleur Tashjian) fleeing their flat while bailiffs bang the door down. In the same episode they jump a black cab without paying in order to get Iris to school on time. It’s non stop action from the get go and the relationship played between mother and daughter is phenomenal.

Filmed across locations in Bristol, Somerset and London, Rain Dogs takes you on a journey of parenting, traumatic pasts and circumstance.

Costello is a troubled stripper, aspiring writer and recovering alcoholic. Iris is ten years old and fiercely defensive of her mother, but quite clearly also tired and embarrassed of Costello’s lifestyle. Quickly introduced to the show is Selby (played by Jack Farthing) is a posh, rich, and depicted as mentally unstable, family friend fresh out of prison. Together they make a remarkable trio.

The relationship between Costello and Selby is both toxic and fascinating. Both characters are swimming against a tide of childhood trauma, poor life choices and failing systems, but they are united in their adoration of Iris. Playing at being grownups and essentially doing their best at it, neither of them have support networks capable to offer them love and care so they try to heal each other. It’s obvious from the first scenes together that they have clung to each other in an attempt to fill emotional voids, with Iris flailing around between them.

While negative reviews are flooding IMDb harping on about how the show’s portrayal of parenting leaves a lot to be desired, I personally found the performance of motherhood, poverty, and mental health, to be stunningly relatable.

In later episodes you see Costello and Iris move to country with Selby. This in a desperate attempt to live as stable a life as possible for the sake of Iris. Some might argue with this but up until this point I found it quite unclear whether or not Selby is Iris’s father. What is glaringly obvious though, is both Costello and Selby each love her with ferocity and each have their own demons to admonish. Sadly, their effort at play-acting coparents turns sour extremely quickly.

Though the relationship between the two is unconventional at best and toxic at worst, it is also gut wrenchingly heart warming.

An eclectic group of characters join the cast on a wildly eye opening and at times laugh-out-loud funny, ride!

It’s perfectly normal to hate the people you love ~ Selby

Rain Dogs

I found Rain Dogs relatable and heartbreaking, funny and raw, honest and crass! Everything I love in a good book displayed on screen. I’m gutted this isn’t a novel adaptation to be honest as I’d be downloading the kindle edition to read quick smart.

What it’s like to Love Someone with PMDD: Two Sides of the Same Coin.

Trigger warning ⚠️ contains references to suicidal ideation. Severe mental health health and Premenstrual Dysphoric Disorder. 

‘I used to shout at times of frustration, ask him what the fuck he’s playing at, but this new level of suppression required to stop me exploding in front of my kids, often leads to tears instead.’

Me

We’re supposed to be going out. I don’t really feel like it, actually that’s an understatement, I don’t feel at all like it. I’m trying to put on a brave face for them. It’s futile. I’m waiting for him to get our youngest child dressed but it feels slow, as though he’s not doing it fast enough, on purpose, maybe to annoy me. So the tears prick the back of my eyes and before I know it, I’m shaking with sobs. I used to shout at times of frustration, ask him what the fuck he’s playing at, but this new level of suppression required to stop me exploding in front of my kids, often leads to tears instead. Deep down I know this is irrational behaviour. I even say aloud “I’m sorry, I don’t know why I’m like this.” But they’re just words aren’t they? I’m still like it.

It’s not his fault, and it’s certainly not the children’s fault. Some would argue it isn’t even my fault, because Premenstrual Dysphoric Disorder is physiological. It’s not a behavioural choice. I don’t choose to want to run the-fuck-away or open the flood gates to save myself from screaming the house down every-time I feel overwhelmed.

Some would also argue that there lies the choice. But there’s a stigma attached to a woman’s reproductive system that fuels societal norms and tells me I should be able to control this. I wish people didn’t really believe that. Sadly, many do.

I can feel my senses screaming, the hair on my scalp feels sore, the streams of noise I can hear, the kids to-ing and fro-ing around the house, collectively chattering, the sound of toys clattering and zips being pulled on coats, all feels as though it’s taking place inside of my head. The sounds are amplified and terrifying, because it doesn’t feel normal. I wonder if maybe I’ve finally reached a level of mentally ill that is beyond reparation. But even if that was true, what would I do?

I think about suicide and the perfect ideal of disappearing into an anonymous abyss. I think about not blowing up my life on a two week roster. I think about it against my will. I think about not disappointing more of my loved ones. I think about it, but I can’t do anything with the thoughts, because doing so would harm them irreparably too, and then I wouldn’t even be here to say I’m sorry. And I am sorry. I’m so sorry they have to put up with this. With me.

‘I’m frustrated, yes. Who wouldn’t be. I’m frustrated with the situation.’

Him

Of course I’m sick of walking on eggshells. I know she’s going to kick off in a minute and it’ll be my fault. It’s always my fault. The octaves are increasing and I can sense her anguish. I’m frustrated, yes. Who wouldn’t be. I’m frustrated with the situation. It’s definitely gotten worse since the second pregnancy, and the birth of our son. Or maybe I was just more able to tolerate it before we had two kids. Having children makes the situation harder. I’m running around back and forth trying to get the kids ready and make sure she’s ok. I can’t do everything. I know she’s spoiling for a row. I can feel her distress and it’s grating, because it’s really tough not to take it personally. I know she doesn’t mean it. I know she’s hurting. I don’t put up with this shit for the sake of it. I put up with it because I know her, and this isn’t her.

I try to preempt stressful situations and get ahead of them. Sometimes I don’t listen to the nagging, if I’m honest I don’t always listen to how bad she feels. It’s not because I don’t care, I think we all (men) do this to some degree. We’re just trying to keep our head above water too. Trying to fix it. I hate seeing her in pain. I know it’s real, but I don’t know how to help.

‘I know I’m useless. I guess this need to be useless alone makes me feel noble.’

Me

He’s going to leave me soon. I push him away cyclically because I think it’ll be easier, easier for him, not for me. I know I’m useless. I guess this need to be useless alone makes me feel noble. If I am not around to hurt them with my lack of energy, my anger or my tears, surely that’ll make me a better person? I’ll disappear for them.

Who would want to put up with a hormonal, angry, anxious, and constantly unwell, wife? I’m the mother of his kids but I’m not a great one, am I? How could I be when I can barely keep up with our children? I struggle to walk very far, I’m always tired and I dare say, my pelvic floor ain’t what it used to be. I’m overweight because I’m pumped full of hormones, and I crave sugar in the middle of the night. I’m not the woman he fell in love with. I know that much. I was a skinnier, funner, possibly sexier, but still angry, bitch back then.

I often wonder how we’ll survive this. How we keep coming back from it every month.

Him

I love her. We get through it because the good days keep us going. She is a great mum. I know she doesn’t think she is but I’m proud of her, and I trust her parenting implicitly. Our kids are kind because she’s taught them to be. I know she worries about our daughter picking up on things, but the way I see it is different. I see her doing her best. Our kids are lucky they have what they need, and we have fun. Yes it’s hard, but it’s not just hard. It’s amazing too.

Me

I know everyone fucks their kids up a little bit. With the best intentions our actions impact them. I worry. No, worry isn’t a strong enough word. I am petrified that my kids will remember my dysfunction and forget all the times I tried. Equally, I don’t want them to shoulder the burden of believing I fought only for them. I want to find the strength to do it for me, but it’s hard. I’ve been doing it for too long. I don’t sleep. My brain is a cacophony of clashing thoughts. For two weeks out of every four, I hold on white-knuckle, in an attempt to get to the next phase. It feels like a game of Street Fighter except for the fact that completing a level isn’t victorious. The end is never the end. When the mental torture subsides, I am left with acute physical symptoms. Pain that takes weeks to disappear. Debilitating migraine attacks, chronic and all encumbering fatigue. Dense brain fog, mouth ulcers, and chest pain. Even my face hurts. I might do a small task and need to sleep for the rest of the day. It’s a lot of pressure on him. A lot.

‘Sometimes I say the wrong thing, like “it’s in your head” but I don’t mean it’s not real.’

Him

She says I don’t communicate with her but sometimes it’s easier just to push through. Because there is an end. She sees it as forever, but it’s not all the time. I’m not making excuses for her, but I don’t see it as constant. Maybe I have more hope, but it’s life factors that make life hard, not just her illnesses. Life would be easier if we had more childcare, she got more rest, we had more money. Maybe if I could work less, and so on. Even if we had those things and the gift of hindsight, none of them would cure her health, or eliminate all of our problems, because there’s no such thing as no problems. Families aren’t perfect. Our bests’ might sometimes look different but we’re both doing the very best we can. Everybody I know is dealing with something, and I don’t say that to minimise how she feels, I say it because it’s true. I say it to reassure her, that whatever the problems are, nothing is so bad that I’d give up on her. We’re a family. I don’t dwell on things in the same way she does. I know from living with her that being able to not dwell is a luxury. She doesn’t switch off because she can’t. Sometimes I say the wrong thing, like “it’s in your head” but I don’t mean it’s not real. How she feels. I don’t mean I don’t believe it. I know it’s real. I just want her to know that I don’t worry about us in the same way she does, because I know we’ll be okay.

Chemical Menopause, My Journey: The First Update

The sensory disruption caused a visceral reaction in me and the tears fell. I tried to hide them from my daughter, my eldest, the one who sees all – but I knew she’d noticed.

TW⚠️ PMDD.

  • Cycle: day 17📆
  • Chemical Menopause: day 23💉
  • Mood: Hopeless. Ashamed. Overwhelmed.🥺🔄😭

I knew I was ‘on the turn’ I woke up from a nap last evening anxious and with a montage of intrusive thoughts running through my head.

I tried to shrug it off. I was exhausted from being awake the night before with stabbing pains in my right ovary. I did an ovulation test, mostly just to prove to myself, I know my body as well as I think I do. I am still ovulating.
Logic told me, if I knew it was coming perhaps I could get on top of it?

No. This morning (18.03.23) might have gone differently if I’d had Shaun home, but he had to work and I was alone with both kids.

I told myself we needed to get outside. I called my mum to see if she wanted to come. She was busy but I told her not to worry about me. I was going to be fine.

I wasn’t fine.

I got both kids dressed ready to go out. On our way out of the door I realised I didn’t have my car keys, only to then notice the car wasn’t in the driveway. I’d forgotten that Shaun had it because his is in the garage.

No bother, we’d walk to the park.
I got the kid’s coats and shoes on, put K in the buggy then opened the front door to a thundery downpour.

Tears pricked my eyes and I could tell C was upset we weren’t going to the park after all. I got K back out of the buggy, he started screaming. The sensory disruption caused a visceral reaction in me and the tears fell. I tried to hide them from my daughter, my eldest, the one who sees all – but I knew she’d noticed.
I wanted to explain why I was crying, but doing so just made me cry more.

I don’t want to be this person, desperate to hold it together, but I am her. I’ve spent a lifetime acting impulsively. Acting on my emotions is normal for me.
Just because I’m aware of it now, doesn’t make emotional regulation easier.

I needed help.
I called Shaun to come home, but in doing that I felt an overwhelming sense of shame.
Why can’t I cope?
I was fine yesterday.
Why am I such a useless mother?
They deserve better than this.
Why can’t I stop feeling like a crazy person?
I should be able to control this by now.

Thus the shame cycle continues.

“Being told we can do anything we put our minds to, when in fact we feel utterly incapable when in crisis, perpetuates stigma”

I know it’s going to take time, not just to shut down my ovaries, but to learn new ways to channel the feelings I’m so used to acting on. Self awareness is crucial, but it isn’t a cure all solution. It doesn’t automatically give you a surefire way to break decades of habitual behaviours.

Asking for help, admitting that you don’t feel capable or able to function, parent, be rational, isn’t easy. In fact it can be an excruciatingly painful process and one of the reasons many people don’t reach out. Saying ‘I can’t’ is something we’ve been told for generations is just an excuse.

I remember as a kid hearing words like: ‘There’s no such thing as can’t’

‘You could if you wanted to’

Being told we can do anything we put our minds to, when in fact we feel utterly incapable when in crisis, perpetuates stigma. We’ve heard about toxic positivity right? I won’t dwell here, but I’m sure you get where I’m coming from when I say, I want to and I’m trying but somedays I really can’t…. Giving myself permission to admit this and trying to free myself from a cycle of shame is not instantaneous.

My solution, I’m realising, is an evolving journey of small changes, with setbacks, determination, and a whole lot of hope.

I believe in hope, because I know without it I probably wouldn’t be here.

I’ll update again after my second implant.

Teal Tuesdays – The Fundraiser You Need to Get Behind this April, and Why.

I’m going to be presumptuous and assume that the majority of you that follow me know, I have PMDD.

Premenstrual Dysphoric Disorder is a severe negative reaction in the brain to the natural rise and fall of estrogen and progesterone. It’s suspected this reaction arises from a cellular disorder in the brain. Symptoms can worsen over time and or around reproductive events such as menarche (the first menstrual cycle), pregnancy, birth, miscarriage, and perimenopause. Three weeks ago I chose to turn off my ovaries. A subcutaneous implant of GNRH Analogue was placed under the skin of my abdomen to shut down ovarian function. This process is called Chemical Menopause or medically induced menopause. It should (if it works) put my body into a reversible menopausal state. If this works well and symptoms subside I’ll hopefully be added to the waiting list to have my ovaries removed. This isn’t a first line treatment, nor is it an easy one to endure but for the sake of my health specifically my mental health I felt I had no choice but to utilise this option.

So why the fundraising and what’s this about Teal Tuesdays?

April is PMD awareness month. A whole month dedicated to raising awareness for those of us living with a premenstrual disorder. And this year IAPMD the charity that facilitate awareness month are making Teal Tuesdays their big fundraiser.

How do I get involved? That’s the easy part. Below is a simple step by step guide to taking part.

Why do you need donations? Donations help IAPMD continue to provide vital spaces and educational resources for patients, healthcare providers, and researchers. A donation of just US $25 can fund a 1:1 peer support session for those in need. Funds raised also help IAPMD to further research Premenstrual Disorders and support their mission to create a world where those with a PMD can not only survive – but thrive!

Can I host an event or do my own sponsored thing? Yes absolutely. IAPMD have curated a list of ideas to make it easy and fun to participate.

Image used with permission

Why Teal? The official ribbon colours for PMDD are teal into black and like many charities have a colour that represents them, IAPMD wanted theirs to be a signature colour for those who fundraise for them. Plus, it’s a great colour and IAPMD can’t wait to see what you do with it!

Can I buy something to wear? Yes! Bristol based designer and fellow PMDD patient, my mate, Amy Steel of One Tuff Muvva has donated some super fun designs that you can purchase on T-shirts and a variety of other items. Find them here.

Note from me: PMDD is a debilitating chronic illness that is widely misrepresented and dismissed. It takes a person on average 12 years to get an accurate diagnosis and many women are misdiagnosed with Bipolar Disorder. This charity has not only helped me understand my condition better with their comprehensive resources, their groups have answered many of my questions. Though international IAPMD have a small team and each one of them work tirelessly to make Premenstrual Disorders visible. Their mission is to create a world where those with a PMD can not only survive; but thrive. If you are someone who was assigned female at birth, a woman, wife, mother, daughter, sister – I urge you consider making IAPMD a cause you get behind. PMDD & PME can and does ruin the lives of those living with it. Without information and awareness sufferers will continue to be misdiagnosed and incorrectly treated. It can occur at any age and worsen over time. IAPMD is the only charity of its kind providing international support to PMD sufferers worldwide.

If you’re able, please help!

Chronically misunderstood- My personal experience with shame.

Content warning! Severe Mental Health chat.

I wanted to write this post – no scrap that actually, I NEEDED to write it. Not for sympathy.
Not for ‘attention’ well for attention to the topic maybe, but for my truth.
The need to share my truth of this awful rollercoaster I’m on with my health.

To the outside world my life has never looked less complicated. I’m married to the best man I’ve ever known. I have two beautiful kids. I’m writing and advocating – two of the things that set my soul on fire.

So what have I got to be so hysterical about? This week is the 4th week I’ve not been able to stay up for longer than 3 hours a day. My body is not working as it should. My mum, husband and two of my best friends have all looked after my kids during half term: a week when I should be making memories with them. 3 weeks ago I caught a common cold that left me in bed for 5 days at my mum’s house.
Off the back off that came a Fibro flare, my joints seized and neuropathy took over my extremities. This week I had some blood tests which show my inflammatory markers are high again.

The pain I’ve been trying to hide has left me angry and ashamed. I’m angry because I’m tired of having to explain that I’m sick, even though I don’t ‘look’ it. The physical and mental toll of being unwell is too much.

  • I’m angry at the world for not understanding my needs.
  • I’m angry that the sound of two people talking at once now cause visceral reactions in me, that make me want to run into oncoming traffic.
  • I’m angry because I’m ashamed that once a month during PMDD I am hysterical and I’m ashamed that I can’t look after my own children without help.
  • I’m ashamed at the way I respond to stress and stimuli.
  • I’m ashamed at myself for not being more grateful on the hard days.
  • I’m ashamed that I can’t cope with life in an admirable and inspiring way; because society deems that’s the way disabled people should cope.
  • That I’m not thriving despite anything – I’m surviving at best.

“I’m scared to be around them, in case I fuck them up with my very existence”

Yesterday I walked the dog in the rain and thought about throwing myself in the river. I don’t want to do that, but it’s a thought that niggles for 10-15 days a month, sometimes grows arms & legs & tells me my life, my wonderful life, with my beautiful family isn’t worth sticking around for.

I could and would never intentionally leave my kids, but this knowledge terrifies me too, because sometimes I’m overwhelmed by it. I’m scared to be around them, in case I unintentionally fuck them up with my very existence.

That word again: SHAME in my opinion parents are shamed for their struggles. Especially mothers.

She’s not doing enough her kids are acting out.

She’s doing too much her kids are neglected.

She needs help – those poor kids.

And on it goes, the shame cycle.

For example: usually, after a post like this I get an influx of messages from kind strangers, telling me they’re sending love, and solitary one or two messages from people I know in person. My real life friends. It’s a tough one because whilst we absolutely should not rely on external validation as a coping mechanism, it can still be difficult to tell your brain that. With social media now being our go to resource for almost everything, you think your friends and family have seen it, you think they’re rolling their eyes. And because of those insecurities, it’s hard to dismiss the notion that these feelings, intrusive thoughts and so on, are feelings we indeed should be ashamed of.

I wish she’d keep it to herself because it makes me uncomfortable!

I dunno why she writes all that stuff there’s no need it’s so cringe.

She doesn’t know how lucky she is.

If she were really feeling that bad she wouldn’t be posting about it.

And it got me thinking, is this what we want our children growing up to believe? That when they feel bad about their life they must keep quiet? That if it’s so bad they’re even possibly thinking of ending it, nobody wants to hear about it. They should only tell a doctor or someone close to them because other people, the rest of the world, might feel uncomfortable if the whole truth is shared with them? Should we be teaching our kids that their feelings don’t matter because they’re cringe to read about, silly to other people who might not understand them? Attention seeking.

It’s not about attention, but even if it is – so what? Don’t people who might be feeling suicidal, or so unwell they’re struggling to keep themselves safe, deserve attention?

Aren’t we all – just trying our best to survive, with some of us finding it easier or harder than others at different times. It’s not about comparison, who has it worse, or wanting a pat on the back for speaking out…. It’s about acceptance on a grand scale. It’s about making small changes that will lead to larger societal shifts in how we relate to each other.

For me personally, the problem isn’t with recognising feelings of shame. I’m aware of them I’m aware of behaviours that stem from them. No, for me it’s about self compassion, that’s the one thing I can’t seem to grasp and it’s a major road block in helping me execute strategies to deal with shame and all of its associated emotions.

I made some decisions this week that I hope will help me tackle this moving forward.

Three Books About Love You Need in Your Life.

I’m writing this under a Valentines Day guise, but the truth is I’ve spent all day crying hormonal tears and really, I just wanted an excuse to write about these books of which all have a common theme – love. And while it’s true that love is the common denominator here, each novel takes a unique and exploratory look into different kinds of love. From forced together love that grows from dust, lost love, love for pets, love for hobbies, and of course – all consuming, romantic love. Each story gave me a different take on love, set the hairs at the back of my neck on end and left me deep in my thoughts for days after.

Love Marriage – Monica Ali

Spoiler Alert! TW: Book includes discussions on dysfunctional familial relationships. Addiction, Sexual assault and childhood illness.

Ok, so the above spoilers don’t read as though this is a book about love, but I can assure you, it is. First up is author of Brick Lane Monica Ali’s Love Marriage. Sorry to be the bearer of ills but- if you’re expecting this to be a romantic fairytale of the perfect love marriage tableau, I’m afraid to say you’re going to be disappointed. Instead what this book offers goes much, much deeper.

Love Marriage follows the lives of interracial couple Yasmin and Joe. Yasmin is a twenty four year old junior doctor. She’s engaged to be married to Joe but is still living at home with her Indian parents and brother Arif. Joe, a first year resident gynaecologist also lives at home with his mother, writer and activist Harriet Sangster. Yasmin believes she and Joe are destined for happy ever after. She’s so glad she decided to choose her own fate in a Love Marriage, not dissimilar to that of her own parents. That is until she realises her parents are hiding untold secrets of their own that will shatter her world as she knows it.

Meanwhile Joe is in therapy for sex addiction, Arif is about to have a baby with a white woman out of wedlock, and Yasmin finds comfort in forbidden places as she embarks on a journey of confronting self discovery.

This book is pure soul food! Enlightening, believable and raw. Ali writes with such passion Love Marriage will have you crying with laughter, sadness and a visceral joy. The meaning of life is wrapped up in these pages. An intelligent and addictive take on love in all relationships. Power dynamics are explored, feelings analysed and loyalty tested to its absolute limit – if you start reading it now, I guarantee you’ll be cancelling Valentine’s Day plans in favour of turning pages!

Cat Lady Dawn O’Porter

Spoiler Alert! Contains reference to suicide, grief, poor mental health and marriage breakdown.

The Queen of contemporary fiction does it again! Back with a bang and purr. The thing I love the most about a Dawn O’Porter book is the storylines never read the same. There’s no same same but different with a DOP novel. Each one is it’s own unique reading experience.

Married stepmother Mia’s life is a lie. Sure, on the outside it looks as though she has it all but deep down she’s falling apart, like the rest of us. Grief is what leads Mia to the group of bereaved pet owners, but it isn’t grief for a pet. It’s a tangible grief for a life lost, a marriage in pieces and a longing for her dead mother. It’s loneliness and a love of cats.

Dawn O’Porter’s ability to write two sides of a personality is my opinion unrivalled. You’re lured into a false sense of hero worshipping only to be plunged into reality when the antagonist reveals their exponential flaws. Mia’s journey is a brutally honest reminder that everyone makes mistakes, none of us are perfect and a cat is never just a cat. This is a tale of self love, unexplainable love and love that is truly unconditional. It’ll make you laugh and cry in the same paragraph, a real pleasure. Despite some hard hitting topics Cat Lady is written with humour and sensitivity, an easy book to devour.

After I Do – Taylor Jenkins Reid

Spoiler Alert! Nothing too triggering in this one, but references to sex and grief are present.

After I do came back with a republish in January this year and it was a long anticipated wait for me. I’d read a sample from the previous edition and then found myself not able to download the whole book. However, I can say it was very much worth the wait. Is it even a romance novel if TJR didn’t write it?

Lauren and Ryan have had enough. One can barely tolerate being in the room with the other. It gets so bad that they lose themselves in the monotony and the sniping. They decide to walk away, end their marriage and start over – but only for a year.

It’s the ultimate test and a little unbelievable, though isn’t that exactly what we ask for in a love story? Modern The Notebook vibes, California sunshine and all heart. This book had me relating so hard I was ready to file for divorce, until I got to the end. I felt every word and the pages were full of authenticity and magic. I love every single one of Taylor’s books, but this one will keep a special place in my heart.

You can thank me for these jewels later. Get the tissues ready, you’ll need them. Be prepared to absorb yourself in each story, clear your schedules, read at every opportunity and enjoy! 📚

It’s Scary dealing with a Flare Up when you have Chronic Illness.

Flare up definition: A situation in which something such as violence, pain, or anger suddenly begins or becomes much worse

Medical Dictionary

It’s doesn’t matter how long you’ve been living with your illness, or whether or not you’ve experienced something similar with previous flare-ups – The reality is that when symptoms increase or worsen, it’s scary.

Living with chronic health conditions leave you vulnerable. On the days my pain is so intense that I can’t think about anything else, my mouth is full of ulcers and no matter how much rest I get l, I still can’t physically stay awake, on those days I’m not just scared, I’m terrified.

  • I’m scared for a few reasons one of them being, I wonder if this is it, is this the new level of disabled at which I must live the rest of my life.
  • I wonder if it’s something else. I could bet, almost every chronically ill person alive will tell you, it’s common for us to ignore worrying symptoms such as chest pain or numbness. We don’t bother trying to wrestle with the traffic wardens of the NHS, (GP receptionists – I said what I said) having to beg for appointments. We’re used to being in pain. We soldier on, albeit miserably, but that doesn’t mean we’re not scared. Wondering if this time the chest pain really is a heart attack or the migraine is a stroke. We spend our time debilitated simmering on if maybe our pain is being caused by something even more malign.
  • I’m scared because I know it’ll always be this way. Sure there may be periods when I feel better on a sliding scale, ultimately though, I know this is my life. The cycle of up and down and baseline to unbearable will continue for the rest of it. That’s some scary shit to have to live with.
  • I’m afraid my people will eventually give up on me. My husband, my friends. The cancelling plans and feeling constantly burdensome to those you love, is tragic. The feelings are always there in the back of my mind. I spend hours ruminating on if this time they’ll reach their limit of how much support they can offer me. It’s not easy being a sick person and it’s not easy on my loved ones either. It’s not my fault, but it doesn’t make it any less worrying.
  • I’m scared my medication will stop working. When you are living on pharmaceuticals to try and reclaim some semblance of a quality of life, there’s a constant nagging, and valid fear that they will become ineffective or be taken away. It’s a dependency that I never asked for.
  • I’m afraid people will think I’m faking – I often struggle to articulate how awful I feel when my symptoms are exacerbated, because ‘I’m exhausted’ sounds a lot like I’m tired and ‘my whole body aches’ sounds like maybe I just did a work out or played sports – and because of that I fear the judgement of others. Fatigue isn’t the same as being tired and being in chronic and relentlessly agonising pain isn’t the same as post workout aches, but to be able to articulate the level of shit you’re feeling, really isn’t as easy as some might assume.
  • I’m scared my kids will resent having a poorly mum. I spent five days this week in bed at my mums. I’m thirty-five with two kids and there were five days this week I couldn’t care for them. Not only could I not lift my eighteen month old son, I couldn’t drive my daughter to school or stay awake long enough to read books with her. That scares me. It scares me that they’ll grow up feeling I was absent.

It’s hard. It’s harder when you’re met with judgement, ableism and misrepresentation – eg: Sounds like a horrible virus….. no, this is just my life. Or, you were fine last week…. Yep and things change. What do you think caused it?….. Perhaps something, perhaps nothing. I have a lifelong health condition I get sick often.

I wrote this post to try and articulate my thoughts and fears around the latest of flare ups I’ve experienced. I know better days will come again and those are the ones I live for, but in case you’ve ever wondered if being chronically ill is something you just get used to – it isn’t.

Are Friendships Really the Ride or Die Relationships we’re told They Are?

This blog post was inspired by a recent article I read on Refinery29uk. The article takes an interesting look at modern friendships without the presence of rose tinted specs.

If you’re a regular here, you’ll know I’ve been writing about my friendships, and the insecurities I experience in such relationships for quite a while now. This particular article though, was like nothing I’ve read before. Going in with all the clichés here… I felt like it spoke to me! Exploring the paradox of bad friend vs too much of a good friend, was a really interesting take and it’s something I myself have been thinking about in recent years, during times of deep insecurity, to understand myself better I guess. During a very long stint in therapy I examined what it was that made me feel so insecure and oftentimes, anxious, about my friendships. In short, a lot of it stems from my perception of the world and having a lack of stability in certain relationships growing up. Still though, these feelings gnaw at me like a puppy trying to cut new teeth.

You can’t spend your whole life holding the door open for people then get mad when they don’t thank you!

Anon

What I loved about the article mentioned above, was that it really acknowledges that these feelings of deep-rooted insecurity are somewhat common in friendship, and they’re also often to do with our need to please. Like the women depicted in Lauren Geall’s article, I am a person who gives everything to my friendships and then acts confused when it’s not reciprocated. What’s that saying…. You can’t spend your whole life holding the door open for people then get mad when they don’t thank you! In a nutshell, that’s me.

Back when I was in my twenties I would be on the phone for hours at a time ignoring my partner to chat to my friend about her latest relationship drama. I would despise and refuse to speak to the ex, who may have hit or cheated on her – loyal to a fault. I was that puppy, a Rottweiler puppy, with no training and a lot of showing off. But then when I was ostracised from a local pub I frequented because a situationship went sour, none of my then ‘friends’ came with me. They all still went there, chatted and drank with the guy who turned my life upside down and rolled their eyes at me when I got annoyed or upset about it.

Now, in my thirties, my friendships are less dramatic and loyalty doesn’t necessarily mean swilling my mate’s ex on a night out. For me, it simply means caring about a person and letting them know that. Since becoming chronically unwell people have stopped inviting me out. I get it, because the likelihood of me going, without pulling off military style planning, is slim. But I still have friends who check in, want to meet up, for breakfast and a cuppa and I feel less insecure and more sure of my place in their lives. It’s the same when you have kids, lose a loved one, or struggle with your mental health, so many people don’t know how to approach you, so they just stop. Would I do that? No, I wouldn’t. But this is where the article got interesting, because it questions the narrative of fault lying with us, the puppies… because whose fault is it? Is it even anybodies?

What I’ve learned whilst navigating adult friendships is this, some people will just leave your life without a backward glance and it hurts like hell, but you have to accept those people aren’t your people. Some people will drift and then return and others will be there through it all. But even those that are there through it all, they might not be there in the capacity you would, if the boot was on the other foot. Because they aren’t you!

Bottom line…. Lower your expectations, treat everyone with kindness and cut out anything that feels forced or fake. Life is too short for shitty eyebrows and shitty friends.

(Not) 2022 In Review

In keeping with a recent blog I wrote that had a very clear yet totally metaphoric ‘food’ theme. I wanted to continue the metaphor and write another blog in similar fashion, about my year.

I’ll start by saying, it’d be easy for me to write a tick box of the things I’ve achieved professionally in 2022.

Quit a job where the hours didn’t support the limitations of my disability ☑️

Published my first newspaper article and my first short story ☑️

Got nominated for a Mental Health Blogger award ☑️

Found a job that fuels my passions and hours I can work around my sick days☑️

But this isn’t LinkedIn and whilst these are great achievements, they’re the icing on the cake – not the cake itself. For me, the actual cake is all about the ingredients. The ingredients which I collected, gathered, thoughtfully and responsibly sourced and lovingly cooked up, once I realised what kind of cake my life had been lacking for, well…. ever!

Ok, let’s drop the metaphors for a moment. I think what I’m trying to to say is, for a long, long time, I was basing my value and happiness on the things I could do that weren’t limited by my health, both physical and mental. For example, I can’t run because of limited mobility, but telling people I was walking my way back to health just didn’t feel good enough. Spending a lot of time resting to avoid things that trigger my poor mental (and physical) health, well, it just doesn’t sound very productive. I always feel lacking in some way. I didn’t want to, and couldn’t, drink alcohol for most of 2022 because of medication, but saying I went for a really great breakfast date with my friend just felt lame amidst conversations of wild nights out and instaworthy excursions. I’ve seen friends so scarcely over the past year while watching everybody else, including my own mum, have a social life that would trump that of Kate Moss in her halcyon days.

I didn’t stick to regular baby groups or devote my time to the school’s PTA. I spent half of 2022 unable to even do the school run at all, because I couldn’t lift my son, and definitely not his pushchair out of the car on my own. Not least do both while holding my daughter’s hand. Instead of these things, I spent months trialling hormone replacements and cholesterol lowering medications, to lower my risk of both suicide and heart attack. And when the most exciting thing you did all year was stay overnight in a Mollies Diner with your six year old…. Well, it just doesn’t have the same ring to it as ‘I partied with my girlfriends on a hen do in Ibiza’ or ‘I took the family to Lapland for Christmas’ (Though Lapland is 100% on my bucket list)

That said, the ingredients I ended up finding and mixing for my own special 2022 cake, are worth sharing. They’re worth sharing because they’ve kept me alive, but not only that, they’ve actually made me pretty happy.

So here’s a list of that extra special ‘cake’ recipe I discovered during 2022.

Therapy is something I talk about a lot so won’t dwell on too much here… but it was previously something I had determinedly avoided really seeing through – that is until this year. I’ll say, one last time that I recommend everybody have a course of good quality therapy at least once in their lifetime. It really is life changing.

Liking myself was a close second in non negotiable ingredients for the perfect slice of life cake. Once I’d completed therapy and the shock of reliving past trauma had passed, I got serious about cutting myself some slack. All of the things I mentioned above that had me feeling lacking, were more a result of me just not really being okay with who I was and how my life had turned out. I didn’t do anything special to help like myself better, I just tried (and continue to try) to make sure that everything I do, I do with integrity. I’ve stopped doing things that leave me feeling bitter and agreeing to things I know I don’t really want to do. I could list many changes but the bottom line is self compassion.

Acceptance is the hardest one. It’s an ingredient I thought I would never be able to find and keep. I’ve spent a life time pretending I don’t care about situations I’ve been in, pretending to have accepted something unchangeable, but then remaining tightly wound and seething inside. Learning to really accept things for exactly as they are – is not easy, but once you master it – or in the case of the metaphorical cake – add a dash of it – it tastes great!

Quality time with the people I love. Real, meaningful, wholesome time. Conversations I’ll remember forever because I was present and listening. Being a reciprocating participant instead of being someone who shows up at surface level.

When I look back at this list of ‘ingredients’ I know that by following the ‘cooking guidelines’ consistently, that happiness can be found in a big ol’ slice of this cake.

🥳 Happy New Year 🥳

Blacklisted for Having Kids.

I read an article this week written for Stylist. and it boiled my blood a little. I’m hormonal (cycle day 26) and so this may have been a slight overreaction on my part…. But let me explain.

The article which first caught my attention via a quote on instagram, was displayed with the words….

“So many times I’ve wanted to say, stop sending me unsolicited pictures of your children. I’m sick of being cancelled on at the last minute.”

@Stylistmagazine

Now we all know media pulls quotes for attention, writers – including myself – do too! The reason this got me going wasn’t because it’s written by someone who doesn’t have children and therefore they cannot comprehend the incessant need as a parent, to snap cute pictures of your kids during all stages, at all times… Instead, it was the ‘I’m sick of being cancelled at the last minute’ comment that got my knickers in a knot. This, because sure, it’s shit being cancelled on, but if the excuse is the kids, then someone whom doesn’t have children (especially small ones) can’t relate to the magnitude of their needs, and the ever present fear as a mother, that you might indeed need to cancel plans at the very last minute because your child has yet another temperature that’s just a modicum too high for your liking. A snotty nose that needs constant wiping, or God-forbid they randomly vomited up the dinner you cooked them just hours ago, before you dressed to go out.

Secondary to the above, I saw a tweet referencing parents which read….

‘Remote working = even more excuses for parents to claim ‘sick’ kids for their lack of productivity.’

Misogynistic Corporate Type – Twitter

I mean, WHAT THE ACTUAL?? Last I checked, we were about to enter 2023 but here I found myself trawling the dark ages of Twitter.

Not only does the tweet make little sense, given that remote working has proven parents in particular to have increased levels of productivity, it was written by a man whom also doesn’t have children.

The generalisation that all parents, though let’s be honest – we’re talking predominantly mothers here – use any excuse to a) bail on their friends at the last minute and 2) skive off work all day, is perhaps not surprising but alarming nonetheless. It suggests that we (mothers) are literally at the bottom of everybody’s reliability list. Which is ridiculous if you consider how committed the majority of us are when it comes to parenting our children.

What maybe bothered me the most, is the realisation that I used to be one of these presumptuous, and unashamedly judgemental, people. Eye rolling at every new upload of somebody’s kid eating their first broccoli. NGL I still eye-roll at this on occasion but in my defence, the eye-roll is inward and I’m far less frivolous with my judgement. To think I may have been somebody whom put parents in a specific and wrongly undervalued category, now makes me cringe!!

My best friend had birthed three children before I’d had any and I’m ashamed to admit that I used to be a person who assumed her absence from events was down to fabricated childhood illness. Now, as a mother of two and someone that has more health issues than Katie Hopkins has haters, I’ve had to make peace with becoming the unreliable and often-absent, friend.

However, I’d like to be clear, my excuses for bailing on my mates at the last minute, aren’t in fact excuses at all. They are instead justifiable reasons. As would be one of my child-free friends cancelling because their cat was on its’ last paws. If anything, rather than giving me an endless list of get-out-of-jail-free excuses, it was actually motherhood that opened my eyes to all possible eventualities. And it was both that and disability which provided me with the eye-opening, and painfully stark dose of reality, that life can and does change at the drop of the proverbial hat.

It would seem our unreliability as parents, through no fault of our own, has black-listed us to our own unique and increasingly lonely, club.

If your friends are sending you ‘unsolicited’ pics of their children, for fuck’s sake, have a conversation with them. I know myself, as a mother and a friend, I would hate for my pals to be in receipt of pictures from me which they felt strongly enough to complain about. Whether those pictures are of unfunny memes, plates of food I have no desire to recreate, or even cute (or not cute) kids doing boring shit. If my friend was constantly filling my WhatsApp feed with photos that left me feeling drained, or gave me the ick, I can assure you – I’d be ribbing her about it. Thankfully, I can say with confidence that the pictures I get from my mates are usually hilarious, cute or relevant. Even if they’re none of those things though, I can still appreciate the joy such a picture may have brought to the sender and go about my day without feeling personally affronted by it. Unless, for obvious reasons, it’s an unsolicited dick pic from a man… in which case… friend or no friend = B L O C K E D.

To my friends, the parents and the pet parents and the single, and the child-free, you’re good! Keep uploading those pics of your cute kids and your dinner to Instagram. I promise the ones I’m uninterested in I’ll just mind my business and scroll past. And whatever you do, don’t feel guilty for needing to rearrange your working day because one of your kids is sick. Being a working parent is stressful enough without adding in an extra dose of guilt. Your kids may not yet appreciate your sacrifice, but believe once they enter adulthood themselves they’ll be grateful for the days you changed sick bowls and soiled sheets instead of answering phone calls.

My Secret Recipe for the perfect Burnout.

Yes you read that right – it’s not a recipe passed down via generations of familial cooks. It’s not a recipe for the perfect ‘loaf’ though I did try to implement my copywriting skills and include ‘loaf’ in the title, as you can see, it didn’t work!

So what do you add when you’re trying to drive yourself over the proverbial edge?

First, let’s add some flavour and really get this course of self destruction cooking on gas.

Starter – Fuck This Shit

  • To start I like to include a heavy dose of listening to the kids scream from the minute they wake. The youngest starts by demanding milk, the biggest already irritated before her eyes are fully open at the sound of his shrillness.
  • Forget whether or not your took your medication already.
  • Then to ensure full discord is achieved before 8am, add in a few shakes of them both refusing to get dressed or eat their breakfast. Not a morsel passes tightly pressed lips.
  • The starter is almost ready but don’t forget to find PE kit, £1 coin for Christmas jumper day, the Christmas jumper that was dirty last night – sniff test says it’s musty but passable.
  • Drive to the end of the street and realise you’ve forgotten lunch boxes or gloves – insert other casual but necessary items here (such as waterproofs coat) to season.
  • Go home and retrieve forgotten property and return it to school before you’ve even sipped a cup of tea. Remember to order your online shop to stir things up a bit.
  • Shopping makes you hungry so eat a handful of biscuits and fuck the diet right out the window.
  • Finally, to serve garnish with a text message from school telling you PE is tomorrow.

Main course – Straw, Camel and a Broken Back.

  • For the main course, start by going to the park. Then watch one hundred and fifty episodes of Paddington Bear.
  • Yawn for a full thirty minutes because you’re exhausted. Take some painkillers and fight like hell with your toddler to take a nap.
  • Continue fight until you can no longer tolerate the sound of their objections.
  • Stand on a musical toy on your way out of the room to really amp up the frustration.
  • Add a dash of washing, a sprinkle of life admin and a few sneezes. The latter is as a result of tries and tested germ passing between members of your household. A cough to the eyes, a sneeze to the face, etc etc.
  • Squeeze a juice of ‘I have only one hour to get four hours worth of work done’ and stir.
  • Add in your mum popping in with some bits for you and ever so slightly wincing at the state of your house.
  • Then add a cup of the baby getting woken up by the dog barking at the sound of your mum at the door.
  • Finally, to garnish, try for another hour to get the baby back to sleep. Take some painkillers, make another cup of tea you won’t get to drink and pay every single bill and fill out the calendar with forest school dates for the next term. Delicious!

Dessert – Brain Fog, Chronic Pain and Tears.

  • You’ve been looking forward to this all day. It’s your favourite dish. It’s super easy to make. You just hand both of your kids to your husband as he walks through the door at 5.30pm and enjoy.
  • Haha just kidding, first you must do homework with child number 1 whilst child number 2 screams in the background.
  • You’re in pain. You’re exhausted and your husband tuts around you wiping down surfaces and complaining the house is a mess.
  • Pour in a bath, for them, not you, and don’t even think about relaxing because you still haven’t tidied up the toys that are about to boil over and saturate the last of available space in your overcrowded two bedroom terrace.
  • Read three stories, complain about how much more exhausted you are than your husband. Ignore your messages whilst scrolling instagram.
  • Add a kiss goodnight and thirty-five cups of ‘Wake the fuck up’ before morning.

Chef’s tips – for full flavour!

Don’t ask for help, it’s unlikely you’ll get it even though at least five people have said ‘Let me know if you need anything’ they don’t mean it, they aren’t really listening.

Make sure you run out of your medicines on a Friday so you’re fucked for the weekend.

Book a babysitter and be grateful when you have to cancel that it’s because you’re sick and not one (or both) of the kids.

Work until at least ten o’clock every night because it’s the only time you’ll have to do anything without a screaming commentary.

Treat yourself to a takeaway and then wonder where all your money goes and why you haven’t lost your two year old baby weight.

More scrolling comparing yourself to people you’ve never met, online.

If you like things really spicy, let the washing pile up, eat another takeaway instead, and run yourself a bath. Or better still, go to bed when the kids go to bed and enjoy the extra thirty-five minutes of sleep you’ll get.

Bon Appetite!! 👩🏻‍🍳

In all seriousness now – Obviously (I hope it’s obvious) the above text is meant in jest. Nobody should follow this recipe. If anything – please take this as a reminder to TAKE A BREAK. Motherhood is hard. Your children adore you. You’re doing great. 💕

HRT to treat PMDD week 19

Can’t believe it’s been 9 weeks since I last wrote an update on my HRT journey. A journey is exactly one of the words I’d use to describe it. There’s so much in the media at the moment about the use of hormone replacement therapy, and often strong opinions both for and against. I’d say for me, I’m still pretty on the fence.

So what are the three words I’d use to describe this most recent cycle? Improved, unusual, and you guessed it (a) journey.

Improved. Because, for the first time since commencing treatment I felt a really significant improvement in psychiatric PMDD symptoms last month. The level of anxiety was what I consider bearable (no anxiety is nice, but when you’ve felt close to the edge every month for decades, bearable is considered good!)

Unusual. This one is a weird one. I can’t work out why my symptoms were reduced. I’ve been using ovulation strips when I think I’m ovulating to confirm that I’m still cycling, and unfortunately- I am. So it’s not as if there was some kind of ovarian wipe out that can be thanked for the minimal mental turmoil. But we celebrate small wins here. And it’s nice to report feeling less tormented, for once.

The Journey is ongoing. In fact, I’m certain it always will be. Whether that be post op – or continuing with my reproductive system ‘in tact.’ I know this, because trauma and our experiences of it never really leave, so even in the absence of horrific PMDD my mind is still naturally searching for worse case scenarios. It can pluck them so easily from seemingly thin air!

Observations

I feel I need less oestrogen around ovulation and more straight after it. A steady dose of high supplementation is not always the missing jigsaw piece. I am not medical in any way, but I know my body, probably better than I know anything. If I have too much on the lead up to ovulation, I become anxious in follicular. This is less than ideal because this should be my ‘good’ week. So I am going to talk to my gynaecologist about tweaking dose and admission around this time, and see if it results in a positive change.

I’ve started planning my life around PMDD again. I used to do this around my period specifically, but now I focus solely on my moods and when they’re likely to turn. It’s not ideal, but it is necessary to get the best out of my days.

I’m about to ovulate again any day now and my usual body aches, shingles pain and mouth ulcers are creeping back in, as they do every month around this time. So it’ll be after next week that I’ll tell if I had a one off better cycle last month, or if HRT can indeed finally be thanked for the decrease in negative mood fluctuations. It’s a rollercoaster that’s for sure, but anything, any scrap of positivity is better than PMDD itself. So like with most minor improvements in my life, I cling to them with fervour and hope for the best.

Because in the end, despite science and medical intervention, hope is what keeps me going. ❤️

It’s a small world. A short story.

Selin Andrews woke up feeling flat. It wasn’t the first time this week, or even this month she’d felt drained of all her energy. Her mouth felt like sandpaper and her head as though it was filled with cotton wool. As she brushed the length of her long auburn hair in the mirror of her childhood bedroom, she stared at the dark circles that had become a permanent fixture around her hazel eyes, wondering if she could call in sick at work again, preferably without her mum noticing. Unlikely, considering her mum was a lady of leisure these days. Michelle Andrews spent an age dawdling around the house in the mornings, getting ready for lunches at the Ivy or another equally fancy restaurant, with one of her equally fancy friends. It wasn’t that Selin begrudged her mum this social acclaim, Michelle was a lovely mum whom was making the most of every second of her long awaited retirement, and Selin was happy for her, but she was also jealous. It pained her that her own life once so full of vivacity and social engagements, now revolved around whether or not she could summon the energy and the mental courage needed to climb out of bed and inhabit the shower of a morning.

You need to help yourself, Michelle would say, with kindness, though barely managing to disguise her evident frustration. What Michelle didn’t understand, is that Selin was trying to help herself, and she herself was also extremely frustrated. The days she managed to turn up to work despite being wracked with pain was such an achievement, she really felt as though she deserved a medal. Unfortunately nobody was giving out medals for turning up to work. Even when that turning up would cost Selin a whole weekend in bed trying to recoup some of the energy she’d lost doing so. She knew she’d been off sick lots. She knew her colleagues questioned the authenticity of her illness. She knew this, because she too had once been a colleague who rolled her eyes when the serial “sick note” called in yet again. That was until life had struck her with a debilitating illness that nobody could see. Sometimes as she sat here in her childhood bedroom staring at the garish pink wallpaper her mum hadn’t bothered to replace, she wished she’d lost her leg in a car crash. She knew these thoughts were irrational, insane even, but Selin felt with such an injury a modicum of sympathy might have been thrown her way. These days all she got was noncommittal murmurs and the odd poorly concealed eye roll.

Selin grabbed her phone from its charging port on her bedside table. As she tapped it the screen flashed up with a photograph of the family dog. Drew was an eight year old Red Setter that had the greying eyebrows of an old man, he was also her best friend. The knowledge that at twenty-five years of age she had a best friend of the non human variety depressed her greatly. Her phone told her it was six fifty am and that, as expected, she had no new messages. She tapped into Instagram where her life lit up again. People all over the country and some even in other parts of the world, passed by her profile to double tap on a picture or comment on one of the many inspirational quotes she liked to share. She had friends and family following her instalife too, but either rarely bothered to take the half a second it took to double tap her latest upload, and even fewer left comments or slid into her DM’s. But when Selin’s body forbid her from being able to leave the house, it was this virtual world that was helping her stay connected. When her friends had stopped checking in and her world had become small, this online space had opened up to fill a void. It allowed her to connect with people who understood her situation. People whom were going through similar themselves.

It had been four years since Selin had been diagnosed with Fibromyalgia and Chronic Fatigue Syndrome, though the reality was she’d been living with it and many comorbid conditions, for much longer. Her life had once been vibrant and full. Days and nights out with friends scribbled on a calendar which had hung loosely to the kitchen wall in her flat. Her flat. The one she had shared with her ex, James. James had been a good boyfriend for the most part of their relationship, he’d stayed in a lot of nights with her when she wasn’t physically able to drag herself out to socialise. He’d been with her that day in rheumatology when she’d been diagnosed. He’d even seemed positive at first, with a real desire to help her manage this complex condition. Then when she’d been off sick for weeks at a time and he came home to her unable to move from the sofa to their bedroom without his help, he’d started looking at her differently. It had happened gradually, the transition, his blue eyes that had once belied a lust and deep love had started to look at her with pity. Instead of staying in with her on the weekends or planning around her illness, he’d began going out more often with his friends. Coming home later and later, until one night he didn’t come home at all. Selin had been out of her mind. Already prone to anxiety, she’d called all of his friends to find out where he was and when they weren’t forthcoming she’d phoned his family, and the local hospitals.

As she sat now scrolling her newsfeed, double tapping on posts she’d missed from people she followed, she decided that today would be one of those days she fought her body and took it to work. Or at least, she’d give it her best shot. ***

Lacey Rowe had been following Selin’s ChronicallyBored instagram page for some time. She liked seeing the quotes Selin created herself and shared with her audience. Lacey also had fibromyalgia and it had become so bad over the past two years she’d had no choice but to give up her job at a publishing house. Lacey now stayed home day in day out, doing her best to manage her health. She was relentless with routine and tried hard to go to bed at roughly the same time every night, eat consistently healthy foods and had given up her beloved wine in search of cures. A belief that cutting out vices would ease her pain. Lacey no longer worked, but she had responsibilities Selin didn’t have. Lacey had a son. His name was Rafe and he was just about to turn three. Rafe was a well behaved three year old. His cherub face was always smiling and his speech was great for his age, he also never, ever, forgot his manners. In some ways Lacey took all the credit for his upbringing, she knew she’d done a great job and he was teacher’s pet at his preschool too. But she also felt immense guilt. Every time she looked into her son’s chocolate brown eyes and sniffed the sent of his chestnut hair, she felt a stab so acute she wondered if a person could die from such feeling. Lacey’s guilt stemmed from not being able to do all the fun things Rafe’s friends’ parents did. Like host parties in their gardens and offer to help out for stay and play in his preschool class. For starters, living on benefits meant they had very little money left over after necessities were paid for, and secondly, Lacey simply didn’t have the energy or confidence to offer to volunteer her time. She knew the other mums at preschool thought she was odd, possibly even rude. She was neither of those things, but she was unwell. Making small talk was hard for her as brainfog rained over her thoughts and left her forgetting her words. She would constantly stutter and trip over them whenever she attempted conversation with a stranger. That’s why she loved following account’s like Selin’s. They made her feel seen. She knew Selin didn’t have children, but in age there was not much between them and she was pleased to learn they even lived reasonably close to each other. Selin was always tagging Bath as the location in which her photos were taken and Lacey lived about twenty minutes away by train, in a suburb just outside of Bristol.

***

Selin’s workplace was situated in central Bath. What was once a Georgian townhouse was now several small office spaces where she worked selling advertising for a local newspaper. The building itself was ornate, complete with sash windows and a boardroom- which had likely once been the lounge of a wealthy bank manager- overlooked the heritage city. Her office was quiet. The desk she manned was one of four, the others inhabited by Janet, a vibrant lady of indeterminable age, Sasha, also twenty-five and already married to a successful entrepreneur and Juliet, Selin’s very stern, and very straight, boss. Selin’s role was mainly administrative, fairly low grade and uncomplicated work for most people. Though Selin wasn’t most people. The moment she’d entered the building earlier that morning, she’d known it had been a mistake. The air was stuffy and emitting a damp smell which played havoc with her senses. The monitor she was working on too bright and the chair she sat on no longer adjusted to support her back. The pain had accosted her body just ten minutes after the start of her shift. As she forced her eyes to focus she felt her phone vibrate in her pocket. Realising it was now almost lunchtime, she decided to wait until then to read the notification, which she doubted was anything other than one of her many shopping apps alerting her to their latest sale. When she finally did walk out onto the cobbled street and pull her phone from her bag she saw instead that is was a direct message from Lacey. Selin had interacted with Lacey tons of times since the launch of her instagram profile and they’d had such a good rapport she felt as though she really knew her, despite the two of them having never met in person. Lacey’s message was about to change that, it read: Time to stop talking about it and plan in a date to meet up. Rafe is at his dad’s this weekend why don’t you come here and we can drink tea and lounge about on the sofa?

Her anxiety addled brain told Selin no way. She couldn’t possibly travel to Bristol on her own. She would have a panic attack or get stuck trying to get off the train. She’d be in so much pain when she arrived that she’d surely need a lie down immediately, and what fun would she be to Lacey then? Lacey had anticipated this would be her reaction and before Selin had even begun typing a reply her phone chimed with a second message: I know you’ll be tired when you get here so I’ll collect you from the station and drop you back whenever you feel like you’ve had enough. No pressure. X

She needed a friend, more than she had ever needed anything in her life. Somebody to complain about the day with and make inappropriate jokes about life with chronic illness. The kind of jokes that healthy people didn’t understand or find funny. She decided that instant that she would go. She still didn’t know if she’d manage the train though and planned to ask her mum to give her a lift instead. Hurriedly, whilst trying to stuff half a tuna baguette into her mouth at the same time, she sent a message back accepting Lacey’s invitation.

***

When Michelle pulled up outside Lacey’s new build with its overgrown hedge, she noticed the children’s toys stacked neatly to the side of the blue front door. It was weird to her that Selin would have a friend with a child. She was still Michelle’s baby, and her life had been so halted since she became ill that Michelle often wondered if Selin would ever make her a grandmother. Nevertheless she was glad her daughter was making friends, and hoped that the shared experiences would mean Lacey wouldn’t drop her daughter like a hot cake when the going got tough. Because it did, get tough and she’d seen the devastation Selin felt when friendships had inevitably failed. She’d felt the grief of her daughter’s health just as profoundly as Selin herself had. Smiling, she waved her daughter goodbye and drove the thirty minute journey back to Bath with a good feeling deep in her solar plexus.

When Lacey opened the door Selin knew instantly that she’d made the right choice. The petite woman with her dark hair and elfin features drew Selin into a deep hug and told her the kettle was on. Lacey’s house smelt of cinnamon and though a little untidy in places, it wore the coziness of a much older, and well lived in space. Sinking into the soft leather of Lacey’s sofa whilst waiting for the tea to brew the pair struck up a diatribe of conversation that was so easy it felt as though they’d been friends ten years, not ten minutes.

The two women spent the afternoon laughing. They drank copious amounts of tea that had Selin running to Lacey’s downstairs loo every half hour, sitting on the pan with the door ajar so she could continue conversation. They had so much in common it felt bizarre. Lacey opened up about the breakdown of her relationship with Rafe’s father, telling Selin how he’d left her when she was a few months postpartum and suffering severe postnatal depression. Selin told Lacey how James had become more like a carer than a lover. They each took comfort in the other’s life experience and neither felt they were being pitied. In fact their respective health, though relevant to the conversation wasn’t the focal point. They both loved eighties music and neon, fancied the new bloke in Eastenders though neither could remember his name.

When it was time for Selin to leave, Lacey hugged her new friend tightly. A solidarity had formed between the pair and when they agreed to meet again in a fortnight and venture out for lunch, each knew, without discomfort or simmering insecurity, that they’d be there. Being sick had made each woman’s world undoubtedly smaller, but together they were about to take future steps towards growing them. Each were as certain of the friendship’s likelihood for longevity as they were that daffodils would bloom the following spring.