5 ‘Therapies’ that don’t involve a therapist.

My world has been spinning out of control again recently. I’ve felt once again overwhelmed and incapable of coping with so much responsibility whilst being so unwell. I’ve not felt like ‘me’ and some days, I’ve not been able to articulate what being ‘me’ feels like. The worst part is -or one of the worst part(s)- as I come out the other side now, is, I know all of these feelings are down to PMDD. Yes I still have overwhelming responsibilities and health issues, with seemingly endless insecurities, in spite of PMDD, but none of them feel as overwhelming when I’m not premenstrual. Such a scary illness… I can’t even… so I won’t…. Instead I’m going to list 5 things that have helped me cope and survive the past week during the latest luteal maelstrom.

I was lucky enough to spend the weekend in Weymouth with my mum and Ciara and truthfully, I had never needed the time away more. The weekend arrived when my panic and anxiety was highest in my cycle. Being around my mum is helpful because she’s very understanding. Though it’s still difficult sometimes to be around people when you’re not at your best. Below are some of the things that helped me through those days and I know they benefitted not only me, but Ciara and mum too.

1. Watching the sunrise.

There’s something so therapeutic about watching the sun rise. There’s a sacredness to being awake before the world officially starts it’s day. Of course there are always a few people milling around, but the first morning light is like a balm for my mind. Even better that this time I got to watch it by the sea. To view the sun’s reflection and listen to the waves lap at the same time is magical. I’ve always felt quite lonely and not very safe at the thought of going outside at the literal crack of dawn, but winter months bring a later sunrise and in the last fortnight I’ve made the effort to get up and out twice to watch it, and can report it was so worth it. There’s a placidity to it that calms my jangling nerves and puts me in a better place to start the day.

2. ‘Fancy’ dress-up

Let’s face it, we’d all like to pretend to be someone else once in a while, right? The sheer effort somedays to put a face of makeup on and make it outside is too much to bear thinking about, but somehow going out of the norm is strangely comforting. I loved being this witchy woman and picking pumpkins with my mini. I wasn’t even bothered at all the weird looks I got -and there were a few- if anything though, I got a confidence boost from them. Sounds weird I know, but with Halloween fast approaching there’s literally no better time to have a bash at being someone else.

3. Creative craft

It’s not ironic that I write my worst days. Ask any creative and they’ll tell you some of their best work was created during times of extreme stress or melancholy. Even without delving into the history of creatives and mental illness, for many of us craft and creativity can be a therapeutic outlet. In fact it’s even seen used in practice such as mindfulness and some forms of CBT. I often try to get creative with the kids when I or they are feeling stressed. It’s a great way to connect without any pressure. It’s something we both, particularly Ciara and I, find really relaxing. This (pictured) creative practise was simply ‘free’ drawing on pumpkins and it was soothing for us both, a great way to wind down from the day’s stressors or after lots of high intensity activity. It’s also a cute Halloween craft and a great idea for rainy days.

4. Creative Writing

As above. The creative process is a calming and therapeutic one. For me, words will always be my go-to outlet. Writing all my thoughts really does help me to process them. This notebook created by my friend and literary idol Emylia Hall, founder of the creative writing course Mothership Writers is full of motherhood writing prompts and gorgeous illustrations. It was the perfect accompaniment to a really rubbish week. I can honestly say I felt better during and after using it. It’s definitely going to be a permanent fixture in my self soothe kit.

5. Nature: Preferably involving wildlife

You don’t have to be an animal lover to appreciate the beauty of wildlife. Some of my favourite de-stress activities include animals in their natural habitat. When I first suffered with lingering PND after Ciara was born back in 2016, a common favourite was feeding the ducks and I’ve resorted back to doing this whenever I feel low. Earning the trust of wildlife requires being present and patient and that’s why it’s such a great grounding activity for when you feel as though you’re losing your mind. This little squirrel pictured, was a little too tame to be honest and made himself comfy on my thigh in wait for Ciara to snap open a monkey nut. It left me with a smile though, and there’s a lot to be said for simple pleasures.

This blog is not intended to substitute medical advice or the advice of a trained professional. If you need to speak to someone about your mental health, please make sure you do so. Be that your therapist, GP or an organisation such as Samaritans. And remember that if you’re concerned about your ability to keep yourself safe please call 999 or go to your nearest A&E.

In the interim though, these few simple, accessible and affordable techniques may help you focus on the present moment. Particularly for those rollercoaster mental health days that are often up and down. To prevent spiralling out of control all together, maybe one or two of these activities can help you process your thoughts a little more clearly. I’m by no means an expert, apart from in the field of my own lived experience, but everyday I am seeking small but manageable ways to be more mindful and regain a modicum of control over the often obsessive thoughts that plague me during both PMDD and times of high stress. We could all do with taking more breaks, and so I hope this blog will be helpful in encouraging you to do just that.

PMDD Lightbulb Moments

This month is premenstrual disorder awareness month and I have teamed up with The International Association Of Premenstrual Disorders as a PMD Awareness Champion. Over the course of the month I’ll be sharing my personal experience of living with PMDD, as well as catching up with other PMDD warriors. This year’s theme is Connect The Dots and I talked to several women I’ve connected with via Instagram to find out how they connected the dots, between their hormones and their mental health.

I asked these brave women three questions which were: 

1. When was your ‘light bulb’ moment?
2. How did you connect the dots?
3. Do you feel as though you’ve found a manageable treatment and if so, would you mind sharing what that is?

I’ve included my own answers below too.

Me, Steph:

I can’t tell you exactly when I knew it was PMDD because hormonal changes have affected me my whole life.

If I look back now I can see how the most traumatic experiences in my life were either in relation to my menstrual cycle or my reaction to such experiences was exacerbated by my hormones and their fluctuating.

For me, I was quite aware of the fact that hormones played a big role in my life and on both my physical health and mood, from a young age. In childhood I had a hormone condition called Premature Adrenarche. PA is diagnosed when your adrenal glands over produce sex hormones. Adrenarche can happen in both male and females, but obviously for females and AFAB individuals, puberty means periods. A lot of my dot connecting came down to PMD’s running in my family, thus having knowledge of them from other sufferers. Since menarche my moods have been severe during luteal, so bad that I was diagnosed with clinical depression at 13 years old and prescribed antidepressants. I also attempted suicide. It wasn’t until some almost ten years later, and I got my first iPhone, that I started cycle tracking using an app. Along with my mum’s knowledge of my symptoms and their severity, we pieced it all together and it became apparent that my symptoms were very obviously cyclical.

Over the years I have had many successes followed by, ultimate failures with treatment. Many treatment options have worked for a limited amount of time, until 𝐏𝐌𝐃𝐃 comes back with a vengeance. For example I’ve tried countless antidepressants and birth control and they have all helped for a period, until they don’t anymore. I can also say it’s definitely worsened in severity and duration since having children. Symptoms have also increased, such as allergies. I’m now allergic to the hair dye I’ve been using for a decade and silver. Migraine is relentless and an attack lasts for days. Treatment wise, I have biweekly B12 injections, try to manage my sugar intake, take SSRI’s month round and use progesterone only contraception – The latter has limited success in the treatment of PMDD, but combined with other methods works ok for me at the moment. What I have found really useful is, since the birth of my son 9 months ago, I have been having intense Dialectal Behavioural Therapy. DBT involves learning distress tolerance skills, and how to dial down the intensity of emotions. Skills include using holistic treatments too such as cold therapy. I really feel DBT has been invaluable in treating symptoms of PMDD particularly.

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Lori:

After giving birth I began mapping how I was feeling along side some cbt for PTSD due to a traumatic birth experience and I started to realise every cycle I was physically and emotionally not well

Research, research, research

CBD oils have been amazing, I live with chronic pain which worsens around my cycle and impacts sleep so these help me get into a deeper sleep, SSRI’s all month too. And lastly, the fitbit app tracking my cycle to rationalise why I’m feeling the way I’m feeling (I can pretty much tell exactly when I’m about to ovulate or bleed based on my emotional state)

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Amy:

For me, it was when I stumbled across the PMDD Information page on the Mind website.

After years of various tests and being told by the doctor that I’m ‘fine’ this was huge. I ticked every single box for PMDD symptoms and I just knew that this was what I was going through each month.

I went back to the doctor armed with this new knowledge plus a symptom diary that i’d been keeping for the previous 6 months and they agreed that the diagnosis was PMDD.

Yes. But it’s just sticking to it that’s the problem! My go to treatments are regular B12 injections, keeping on top of my SSRI intake, Ice hats, pain medication, plus loads of water and trying to cut down on sugar and fatty foods (even though this can seem like the most impossible task in the universe, during hell week!)

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Jaimie:

My lightbulb moment came when the doctors kept telling me I was ‘just’ depressed and giving me SSRI’s and the pill and wouldn’t listen that I only felt this way some of the time rather than fully. Hormonal contraceptives do not agree with me and I knew there was more to it than that but trusted them that they know what they’re doing.

It took a long time but I noticed that I felt immediately relieved and lighter as soon as my period started so good old google came to the rescue and I started reading about PMDD

I felt like for the first time what I had been going through was valid and real when no one seemed to believe me or understand.

I just don’t know how bad each cycle is going to be, however I did find an SSRI useful for a while, they’re not for everyone and I no longer take them. I’ve found that taking things easier/slowing down and planning things for the parts of my cycle where I know I’ll be more positive and less likely to cancel helps because I don’t then feel like I’m letting people down or being unreliable which is a big thing for me – getting outside whenever you can works wonders too even if you don’t feel like it or it’s raining being in nature does more good than people realise

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Maisie:

My light bulb moment was when I was with my ex partner and he called me a psychopath. I was so upset and angry that I punched a hole in the wall. I scared myself with how angry I got. I was so angry that he called me that, but it made me think about what I had done to warrant that, and I thought “shit, I’m not a psychopath, but I’m not myself either, somewhere in between maybe”. It was going round and round in my head, and for a few days every month leading up to my period, I was so deeply upset, I didn’t want to be here, and it was like a cycle that I couldn’t get out of. Why am I like this? This isn’t me. But in the moment, I couldn’t see it.

It wasn’t until I was out the other side of those few days that I could reflect on my behaviour and feelings and realise properly that it ISNT me! I spoke to my GP, who put it down to “bad periods”.

I told them this wasn’t just bad periods, bad periods don’t make you suicidal, aggressive, or run away. Bad periods are tummy cramps and a heavy flow.

I pushed for more help, tests, anything. I was advised to have therapy for my dark thoughts, and they prescribed me SSRI’s. After I gave birth, they changed me to ca different SRRI. But the main help for me is telling my close people “it’s coming” or “it’s happening”. I find myself apologising in advance. “I’m not going to be myself for the next few days and I’m sorry”. Which makes me even more frustrated. No one that I have met so far, has ever heard of PMDD. Except a few queens on Insta! I try to explain it to people by saying “it’s like the volume is turned up full blast on everything. My emotions, the hurt, the anger.” You could say something to me on a normal day and I’d brush it off. But say the same thing to me on those few days and my world comes crashing down. The best treatment I’ve found more than telling people, or medication, or therapy, is reminding myself that it’s all in my head. Sometimes that can be hard, and it doesn’t take the thoughts or sadness or anger away, but it makes them more bearable, knowing that I am ill, not crazy. My ex partner didn’t help, but now he’s gone it’s so much clearer to see. I’m poorly. I have been diagnosed with PMDD, it’s not just in my head but at the same time that’s all it is. Finding others who are going through the same thing and trying to raise awareness for PMDD to others as well as medical professionals helps too. I felt like I was going mad, because I was told I was, and felt like I was. But it was all in my head and that’s where it stays. Like you say (sic) Cunty Carol just comes to visit a few days a week, and where I used to be terrified of her unpredictability, now I can at least say “fuck off Carol, I know why you’re here and I’m okay with it, close the door on your way out”

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To the husband who’s wife has PMDD

To the husband whose wife has PMDD.

I know it’s not your fault. I know you didn’t mean to bring home the wrong milk. I know you didn’t climb inside my fallopian tubes and set my ovaries on fire.

I know you’ve had a long day at work and the last thing you want to do is come home to me, your wife, in tears again.

This time because I’ve ran out of chocolate or because the TV show I wanted to watch didn’t record.

It’s true I’ve cried over the wrong sandwich filling before.

I’m making it sound funnier than it is.

It isn’t funny. Not at all.

There’s nothing funny about my hormones making me want to kill myself at least once every month.

There’s nothing funny about me threatening to leave you every time I’m ovulating because I can’t cope with the depression the change in hormones bring. There’s nothing funny about the pain I feel when my uterus is about to start shedding and the agony that follows it’s onslaught.

It’s not easy for you, to live with this unpredictability. It’s not easy for me either, I don’t recognise myself some weeks. I can’t sleep yet sleep is all I want to do.

I know it must be completely mind boggling for you, when one minute I am Psycho Sasha (the name I’ve given to the me that PMDD releases) and one minute I am just me, your wife, again.

One minute I want to rip your clothes off, or cuddle up close and the next, I quite literally want to punch your face in. Your touch makes me recoil.

I know it’s not your fault when I beg you to turn the Rugby down on the tv because the noise is giving me sensory overload.

I know it’s not your fault that the bubble bath you ran me has to be emptied because the bubbles you added are causing my skin to come out in hives.

You didn’t know, because it didn’t do that last month.

I know it must be hard to keep up, I know it must feel like you can’t do anything right. But please know this, you are doing something right. You are sticking with me. You are amazing to put up with me.

You are a hero for supporting me.

If it’s possible to ask anymore of you, I ask you this… please read about my conditions, please familiarise yourself to better understand the signs. Please educate yourself. That is how you can help me, and in turn I will try everything available to me to help me control it.

It’s not easy, and because of my other conditions some medications are counter productive.

Because of how I feel mentally, counselling can be triggering, but together we can ride this storm better.

Thank you.