To my friends (and family) who don’t have fibromyalgia.

Hey, Thanks for being you, for listening, watching, reading and learning about my condition whilst riding this wave with me. I know it’s been years now. I know it ‘gets old’ boring even, to hear me talk about it ALL. THE. TIME. Part of me is sorry, though I’m not sure I’ll ever stop, becauseContinue reading “To my friends (and family) who don’t have fibromyalgia.”

Call for NICE to play nice with chronic pain sufferers!

For full transparency here is the article NICE published in relation to using alternative methods to treat chronic primary pain that has no known cause. NICE recommends For the most part this starts well, offering people a range of alternative treatments in place of a prescription doesn’t sound so bad does it? The issues hereContinue reading “Call for NICE to play nice with chronic pain sufferers!”

PMDD and pregnancy

April is PMDD Awareness Month and it’s something I’ve not talked about much since becoming pregnant again. PMDD directly corresponds with your menstrual cycle so in theory you should gain relief during pregnancy. However, and this is not fact, merely my personal experience, since PMDD causes an abnormal reaction to normal hormonal changes, whilst youContinue reading “PMDD and pregnancy”

Acceptance isn’t linear

Entitled with contradictory statement maybe? Surely if you accept something, that’s it? Accepted, done, move on. Well….. I disagree. The reason being is, take grief for example, you might accept someone is no longer physically on earth for you to love, but find it hard to accept the feelings that come with that knowledge. It’sContinue reading “Acceptance isn’t linear”

Avulux Vs Migraine

Flashes in your peripheral vision that slowly etch their way into both eyes, overwhelming fatigue with nausea that fills your mouth and makes your stomach roll. Pain in the base of your skull, around your eyes, tingling in your face, maybe in other body parts too. Before you know it you are in bed withContinue reading “Avulux Vs Migraine”

A lot of noise

I make a lot of noise. I do. I talk (or rather write) honestly about my struggles in the hope it helps someone. Not just someone going through the same but maybe also someone trying to better understand a loved one. A lot of the time my honesty is met with kindness and I amContinue reading “A lot of noise”

Pregnant and chronically ill.

Some of you might know my story already. I married my husband in January 2020, we did it just the two of us and it was amazing, but since our wedding, lockdown and covid-19 have presented challenges, as it has for everyone, I’m not naïve enough to believe I’m alone with that and I knowContinue reading “Pregnant and chronically ill.”

Migraine – not just a headache

I have started writing this so many times. It’s a so hard to put into words the debility of a migraine, without it sounding like a bad headache. So I thought long and hard about how I would explain migraines in this blog. I really wanted you to be able to feel what I’m tryingContinue reading “Migraine – not just a headache”

Therapy is not just for picking up broken pieces

A couple of weeks ago I had some news that really turned my world upside down a bit. I haven’t talked about it much because there is so much other stuff going on, but it’s been a struggle managing my emotions. I felt myself spiralling a bit, like I do every so often, usually whenContinue reading “Therapy is not just for picking up broken pieces”

Misophonia – What is it?

I am often overwhelmed by noise. It makes my skin prickle. I never used to feel like that. Not really. Then I had a kid who screamed for 15 hours a day every day for 9 months and I forgot what quiet felt like. But that noise sensitivity did not end when she stopped screaming.Continue reading “Misophonia – What is it?”